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Exploring experiences of ageing in older adults living with HIV in Sweden: a qualitative study
University of Borås, Faculty of Caring Science, Work Life and Social Welfare. Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.ORCID iD: 0000-0002-9194-3244
University of Borås, Faculty of Caring Science, Work Life and Social Welfare. Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden. (Tillämpad vård- och kommunikationsforskning)ORCID iD: 0009-0007-8699-3283
Department of Communication in Healthcare, Nivel, Netherlands Institute for Health Services Research, Utrecht, The Netherlands;Radboud Institute for Health Sciences, Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, The Netherlands.ORCID iD: 0000-0002-1651-7544
University of Borås, Faculty of Caring Science, Work Life and Social Welfare. Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.ORCID iD: 0000-0001-9998-4078
2024 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 19, no 1Article in journal (Refereed) Published
Abstract [en]

Purpose

The number of people living and ageing with HIV is increasing. Insight into their well-being is lacking. The present study was conducted to explore needs, psychosocial issues and experiences of ageing in older adults living with human immunodeficiency virus (HIV) in Sweden.

Methods

A qualitative approach was employed. Semi-structured interviews were conducted with a convenience sample of 22 participants aged 65 years or older living with HIV in Sweden. Thematic analysis based on descriptive phenomenology was used.

Results

Being an older adult living with HIV emerged as a multifaceted experience. The meaning and impact of HIV varied from minimal to substantial, and ageing could overshadow the significance of HIV in everyday life. Three themes emerged: 1) increasing age in the foreground, 2) internalizing HIV in everyday life, and 3) socioemotional impact on everyday life.

Conclusions

The findings suggest a need for a more holistic approach to care of older adults living with HIV, recognizing the broader context of healthy ageing. While participants experienced good health, challenges related to ageing persist, and experiencing HIV-related stigma. The findings highlight the importance of empowering older adults living with HIV.

Place, publisher, year, edition, pages
Taylor & Francis, 2024. Vol. 19, no 1
Keywords [en]
Human immunodeficiency virus, older adults, qualitative, health experiences, ageing, care
National Category
Nursing Gerontology, specialising in Medical and Health Sciences
Research subject
The Human Perspective in Care; The Human Perspective in Care
Identifiers
URN: urn:nbn:se:hb:diva-32517DOI: 10.1080/17482631.2024.2393752ISI: 001299363800001Scopus ID: 2-s2.0-85202501298OAI: oai:DiVA.org:hb-32517DiVA, id: diva2:1896111
Projects
Att trygga ett gott liv för personer som lever med hiv och som är äldreAvailable from: 2024-09-09 Created: 2024-09-09 Last updated: 2025-09-24Bibliographically approved

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Sundler, Annelie JohanssonLund, Marievan Dulmen, SandraCarlsson-Lalloo, Ewa

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