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Unveiling the dynamics of older person care: a qualitative exploration of the intersection between formal and Informal Caregiving from the perspectives of registered nurses in Greece
University of Borås, Faculty of Caring Science, Work Life and Social Welfare.ORCID iD: 0000-0002-2663-5376
University of Borås, Faculty of Caring Science, Work Life and Social Welfare.ORCID iD: 0000-0003-4719-5610
University of Borås, Faculty of Caring Science, Work Life and Social Welfare.ORCID iD: 0000-0002-4319-4584
School of Nursing and Midwifery, Birmingham City University, Westbourne Road, Birmingham, B15 3TN, UK.ORCID iD: 0000-0002-9355-8059
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2024 (English)In: BMC Health Services Research, E-ISSN 1472-6963, Vol. 24, article id 966Article in journal (Refereed) Published
Abstract [en]

In the evolving landscape of older person care, the imperative to explore holistic approaches persists, especially in regions with distinct societal norms around informal caregiving. The deeply ingrained tradition of familial caregiving, often led by female family members, has historically compensated for healthcare system gaps in less integrated systems. Hence, societal expectations may affect registered nurses’ experiences and impact the quality of care for older persons. This study aims to describe the meaning of caring for older persons in care settings in Greece. Ten in-depth interviews with registered nurses in older person care settings underwent qualitative thematic analysis. Four themes emerged from the analysis: (i) Living and bonding with older people as a basis for caring, (ii) Caring as a double-faced fulfillment, (iii) A sense of insufficiency in the caring relationship, and (iv) The encounter of existential issues creating loneliness. This research provides insights into the meaning of caring for older persons, highlighting the experiences of the closest professional caregivers of older individuals. A specific capture of the entanglement of cultural norms, societal expectations, and their impact on professional caregivers’ experiences may contribute to quality care provision in systems rooted in familial caregiving traditions. 

Place, publisher, year, edition, pages
2024. Vol. 24, article id 966
Keywords [en]
Holistic care, Nursing, Family caregiving, Older person care, Qualitative research
National Category
Nursing
Identifiers
URN: urn:nbn:se:hb:diva-32512DOI: 10.1186/s12913-024-11401-5ISI: 001295910500002Scopus ID: 2-s2.0-85201710483OAI: oai:DiVA.org:hb-32512DiVA, id: diva2:1895760
Available from: 2024-09-06 Created: 2024-09-06 Last updated: 2025-09-24Bibliographically approved
In thesis
1. Caring for Older Persons: Phenomenological Insights into the Lived Experiences of Nurses and Nursing Students in Greece and Sweden
Open this publication in new window or tab >>Caring for Older Persons: Phenomenological Insights into the Lived Experiences of Nurses and Nursing Students in Greece and Sweden
2024 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis is part of the INNOVATEDIGNITY Project (Action H2020 Marie Sklodowska Curie/Innovative Education Networks), funded by the European Commission (2019–2023). The project addresses the need for dignified care for older people in response to Europe’s ageing population. As the number of older adults increases, healthcare systems must adapt to ensure dignified care. Registered nurses and nursing students play crucial roles in caring for older persons, yet their lived experiences and the interplay of factors such as gender and cultural aspects of care have been underexplored. This thesis explores the meaning of caring for older persons through the lived experiences of nurses and nursing students in Greece and Sweden. 

Study I involves a systematic review of empirical data from 1993 to 2022, analysing the impact of gender on the nurse-patient relationship through a thematic synthesis of available studies. Study II uses phenomenology according to Reflective Lifeworld Research (RLR) principles to explore nursing students’ lived experiences of caring for older persons in Greece, based on lifeworld interviews with 12 students. Study III focuses on registered nurses in Greece, employing phenomenologically inspired qualitative thematic analysis of 10 lifeworld interviews to uncover the meaning of caring for older persons considering the influence of cultural and societal norms on caring. Study IV employs a phenomenological approach according to RLR through conducting lifeworld interviews with 19 registered nurses (10 in Greece and 9 in Sweden) to describe the essential meaning of caring for older persons based on their lived experiences. 

Study I identifies three key themes related to gender influences in the caring relationship between nurses and older persons uncovering the concept of vulnerability of the body, as well as normative understandings surrounding gender and sexuality, while considering the balance between closeness and distance in the nurse-patient relationship. Building on Study I and the identification of gender’s influence on caregiving dynamics, Study II delves into how nursing students perceive these dynamics in practice, particularly in balancing personal and professional roles. Study III expands on these findings, revealing how societal expectations in Greece shape the caregiving experience. Study IV reveals that the essential meaning of caring for older persons involves an embodied presence in space that allows for a movement in time. Nurses’ experiences highlight the need for flexibility and adapting multifaceted roles within institutional frameworks while emphasising the importance of understanding the existential dimension of care. 

These studies uncover both universal and culturally specific aspects of caregiving, providing critical insights that can shape nursing education and policy. By emphasising the need for gender and context sensitivity, this research has the potential to improve caregiving practices and outcomes for older people. This research highlights the importance of researching lived experiences deriving from different healthcare systems and cultures. By understanding the evolving dynamics, healthcare systems can better support nurses in delivering dignified, holistic care to older persons. The findings can guide improvements in care quality and dignified approaches for those involved in care, as well as supportive environments for nurses across varying healthcare systems.

Place, publisher, year, edition, pages
Borås: Högskolan i Borås, 2024
Series
Skrifter från Högskolan i Borås, ISSN 0280-381X ; 152
Keywords
dignified care, holistic care, older persons, nurses, caring relationship, phenomenology, gender, informal care, kinship care, qualitative research
National Category
Nursing
Research subject
The Human Perspective in Care
Identifiers
urn:nbn:se:hb:diva-32639 (URN)978-91-89833-56-2 (ISBN)978-91-89833-57-9 (ISBN)
Public defence
2024-12-19, D209, Allégatan 1, Borås, 09:00 (English)
Opponent
Supervisors
Available from: 2024-11-26 Created: 2024-10-01 Last updated: 2025-09-24Bibliographically approved

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Xiarchi, LampriniNässén, KristinaPalmér, LinaLindberg, Elisabeth

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