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Recurrent Supraventricular Tachycardia Through The Eyes Of The Patient: Describing Experiences and Developing Care
University of Borås, Faculty of Caring Science, Work Life and Social Welfare.ORCID iD: 0000-0003-1204-0598
2025 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Aim: The overall aim of this thesis is to describe how it is to live, with and being cared for, recurrent supraventricular tachycardia, with emphasis on the patient perspective and how to develop care given.

Approach and Method: The thesis, which has a theoretical foundation in Caring Science, takes an overall inductive approach based on the patient perspective. The lifeworld theory has been used to describe and understand the patient perspective, although several scientific methods have been used, in order to answer the specific research question. Study I was quantitative with a retrospective descriptive design, and II, III, and IV was qualitative with descriptive designs. Study I describe patients’ unplanned visit (2719) at healthcare facilities with symptoms of tachycardia, analysed with descriptive and comparative statistics. Study II describes catheter ablation as experienced when being treated awake for supraventricular tachycardia (SVT). Study III describes patients’ participation in their own health and care process. Both Studies II and III were based on reflective lifeworld approach and interviews (12 and 17, respectively study), using a phenomenological method. Study IV was based on a structured two-phase experience-based co-design (EBCD) methodology, involving participatory workshops with patients (4) and collaborative process development with healthcare providers (7) from specialist care, to reflect on experiences of care to capture and prioritize areas for improvements. A reflexive thematic analysis was used to analyse data.  

Main findings: There is a significant difference in total visits in healthcare centres and/or emergency departments by patients of different sexes. Further, the referral rate is low, especially from healthcare centres to specialist care (cardiologists). Patients undergoing catheter ablation while awake experiences a range of emotions, including reliance on others’ expertise, being actively passive, and striving for a restored health and well-being. The process of undergoing catheter ablation serves as a confirmation of having a physically curable condition, transforming the future from being filled with obstacles due to the tachycardia into an everyday of possibilities. Patient participation involves trust to healthcare that is hampered by lack of continuity. This discontinuity leaves patients with the experience that their lives are on hold in an “existential waiting room” where they trust and hope for treatment for an unpredictable condition that significantly impacts daily life. Participation manifests as a sense of trust in being taken seriously as a whole person, bringing hope for help with their unreliable heart. Reflexive mapping highlighted areas where services were not corresponding with patients’ need and three themes derived: Confidence-building support, Tailored information, and Substantial communication.  

Conclusions: This thesis’s findings highlight the patients’ need of support and involvements in all levels of healthcare, emphasizing the importance of addressing sex- and age-related differences to ensure equitable care. Repeated interactions with various healthcare providers results in a fragmented  

Place, publisher, year, edition, pages
Borås: Högskolan i Borås, 2025.
Series
Skrifter från Högskolan i Borås, ISSN 0280-381X ; 163
Keywords [en]
arrhythmia, caring science, catheter ablation, health, lived experience, patient perspective, phenomenology, reflective lifeworld research, supraventricular tachycardia, participation, experience-based co-design, reflexive thematic analysis
National Category
Cardiology and Cardiovascular Disease Nursing
Research subject
The Human Perspective in Care
Identifiers
URN: urn:nbn:se:hb:diva-34172ISBN: 978-91-89833-87-6 (print)ISBN: 978-91-89833-88-3 (electronic)OAI: oai:DiVA.org:hb-34172DiVA, id: diva2:1993720
Public defence
2025-11-05, Sparbankssalen, Akademiplatsen 1, Borås, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2025-11-14 Created: 2025-09-01 Last updated: 2025-11-07Bibliographically approved
List of papers
1. Health care centre and emergency department utilization by patients with episodes of tachycardia
Open this publication in new window or tab >>Health care centre and emergency department utilization by patients with episodes of tachycardia
2022 (English)In: BMC Cardiovascular Disorders, ISSN 1471-2261, E-ISSN 1471-2261, Vol. 22, no 1, p. 124-, article id 124Article in journal (Refereed) Published
Abstract [en]

Background: Outpatients seek to visit health care facilities for episodes of tachycardia-related signs and symptoms. The challenge for physicians is to balance a proper initial assessment and avoid overlooking a possible arrhythmia. This common situation affects individuals and health care utilization, and effective management may substantially affect health care resources. This study aimed to explore health care utilization for outpatients with episodes of tachycardia visiting health care centres (HCCs) and/or emergency departments (EDs).

Method: This retrospective study used data of adult outpatients (18 years or older) who were assessed by a physiscian as having a specific or nonspecific diagnosis of arrhythmia between 2017 and 2018, and data wrer retrieved from medical records and a regional data registry database. Data were analysed with appropriate statistical analyses to identify disparities between sex, age and terms of search pattern for each health care facility. Analysis of variance was used to test disparities between the sexes, and one-factor ANOVA was used for the incidence of missed arrhythmias.

Results: A total of 2719 visits with 2373 outpatients were included in the study. The result showed a significant difference in the total number of visits (n=2719) between female and male patients (68% vs. 32%, p= .001). In the 60-69- and 70-79-year age groups, females had significantly higher frequencies of visits than males (p= .018). A significant difference was also observed between sexes in terms of which health care facility they tended to visit (p= .001). Ninety-five % of the outpatients visiting EDs were hospitalized. When estimating the incidence of missed arrhythmias (diagnoses) in relation to assessments, the results showed a 5% missed diagnosis involving potential atrioventricular nodal re-entry tachycardia and atrioventricular re-entry tachycardia. Moreover, the referral rate was low, especially from HCCs to cardiologists.

Conclusion: This study shows a significant difference in total visits in HCCs and/or EDs by patients of different sexes and indicates the need of improved care for outpatients with episodes of tachycardia. Sex- and age-related differences must be addressed with an aim of providing equal care. Finally, the low rate of referral from HCCs to cardiologists compared to the high proportion of hospitalizations from EDs, deserves further investigation.

Keywords
episodes of tachycardia, arrhythmia, health care centre, emergency department, sex and age differences, retrospective study
National Category
Medical and Health Sciences Nursing
Research subject
The Human Perspective in Care
Identifiers
urn:nbn:se:hb:diva-27926 (URN)10.1186/s12872-022-02568-y (DOI)000772425800001 ()2-s2.0-85126836335 (Scopus ID)
Available from: 2022-05-26 Created: 2022-05-26 Last updated: 2025-11-07Bibliographically approved
2. Foreign movement in one’s own body: Patients’ experiences of being awake while treated with catheter ablation—a phenomenological study
Open this publication in new window or tab >>Foreign movement in one’s own body: Patients’ experiences of being awake while treated with catheter ablation—a phenomenological study
2023 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 18, no 1Article in journal (Refereed) Published
Abstract [en]

Purpose: To address the consequences of living with supraventricular tachycardia and to improve the quality of treatment, there is a need to highlight patient experiences of treatment with catheter ablation. Therefore, the aim was to describe the phenomenon of catheter ablation, as it is experienced by patients being treated awake. Methods: A descriptive design was applied based on a reflective lifeworld research founded on phenomenological epistemology. Interviews were conducted between December 2021 and Mars 2022 with seven women and five men, three to twelve months after they underwent catheter ablation. Results: Patients undergoing catheter ablation while awake during treatment, which includes experiences of relying on others expertise, being actively passive, and striving to be cured. It entails experiences of having a foreign object moving in one’s body and heart and can be endured through strategies of mainly shifted one’s mental focus. Conclusions: The effort of undergoing a catheter ablation procedure is worthwhile as the confirmation of a physical curable condition that opens a future with possibilities instead of the obstacle in daily life that tachycardia entails. For the patients, an informative and caring conversation was needed that would have provided the support they lacked before and during the ablation.

National Category
Health Sciences
Research subject
The Human Perspective in Care
Identifiers
urn:nbn:se:hb:diva-30210 (URN)10.1080/17482631.2023.2238972 (DOI)001036776000001 ()2-s2.0-85165926843 (Scopus ID)
Available from: 2023-08-03 Created: 2023-08-03 Last updated: 2025-11-07Bibliographically approved

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