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  • 1.
    Vallmark, Mikaela
    et al.
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Brorsson, Anna Lena
    Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden; Gothenburg Centre for Person-Centred Care (GPCC) at University of Gothenburg, Gothenburg, Sweden.
    Sparud-Lundin, Carina
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Gothenburg Centre for Person-Centred Care (GPCC) at University of Gothenburg, Gothenburg, Sweden; Gothenburg Centre for Person-Centred Care (GPCC) at University of Gothenburg, Gothenburg, Sweden; Gothenburg Centre for Person-Centred Care (GPCC) at University of Gothenburg, Gothenburg, Sweden.
    Bratt, Ewa-Lena
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Region Västra Götaland, Sahlgrenska University Hospital, Children’s Heart Center, Gothenburg, Sweden.
    Moons, Philip
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
    Saarijärvi, Markus
    Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden; Gothenburg Centre for Person-Centred Care (GPCC) at University of Gothenburg, Gothenburg, Sweden.
    Acuña Mora, Mariela
    Högskolan i Borås, Akademin för vård, arbetsliv och välfärd.
    Development and psychometric evaluation of TEXP-Q: a questionnaire measuring transition and transfer experiences in emerging adults with type 1 diabetes2023Ingår i: Journal of Patient-Reported Outcomes, E-ISSN 2509-8020, Vol. 7, nr 1, artikel-id 111Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background

    During transition to adulthood and transfer to adult healthcare, emerging adults with chronic conditions are at risk of deteriorating disease control, well-being, and acute, as well as long-term complications. Despite an increasing call for person-centred healthcare services attuned to young peoples’ needs, few validated instruments exist pinpointing adolescents’ and emerging adults’ experiences of preparation for transition and transfer. Thus, the overarching purpose of this study was to develop a person-centred, clinically applicable instrument (Transitional care EXPeriences Questionnaire, TEXP-Q) adjustable to different chronic conditions, although the focus in the present study was Type 1 Diabetes. The specific aim was, therefore, to describe the development and psychometric evaluation of TEXP-Q in emerging adults with Type 1 Diabetes.

    Methods

    Initial development of the TEXP-Q was inspired by existing research. Items were formulated in accordance with consensus recommendations for developing patient-reported measures, and extra consideration was taken to ensure person-centredness. Psychometric evaluation comprised two phases: In phase I, data from cognitive interviews, content validity indexing, and judgement of an expert panel provided information on face and content validity. In phase II, data from a cross-sectional study conducted at eight adult diabetes outpatient clinics in Sweden (n = 163) allowed for explorative factor analysis (EFA), as well as calculation of content validity, reliability and responsiveness.

    Results

    Combining results from cognitive interviews, content validity index values and expert panel judgement, a test version of TEXP-Q was developed, the content and face validity of which were considered good. This version consisted of 17 items answered on a five-point Likert scale, and three open-ended questions answered in free text. During EFA, four items were removed, and a three-factor solution was recognised as most adequate, accounting for 60% cumulative variance and one single cross-loading. After EFA, the instrument comprised 13 questions, divided into three latent factors. Cronbach’s alpha for the complete instrument was 0.866, which indicates good internal consistency. Crohnbach’s alpha approximated to 0.8 for all factors respectively.

    Conclusion

    TEXP-Q is a newly developed, person-centred instrument which has proven to be both valid and reliable when applied to youths with T1D. The questionnaire fills a need for instruments focusing on emerging adults’ experiences of preparation for transition and transfer.

     

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  • 2.
    Bratt, Ewa-Lena
    et al.
    Institute of Health and Care Science, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Region Västra Götaland, Sahlgrenska University Hospital, Children's Heart Center, Gothenburg, Sweden.
    Mora, Mariela Acuna
    Högskolan i Borås, Akademin för vård, arbetsliv och välfärd. Institute of Health and Care Science, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Sparud-Lundin, Carina
    Institute of Health and Care Science, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; .
    Saarijärvi, Markus
    Institute of Health and Care Science, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden.
    Burström, Åsa
    Department of Neurobiology, Care Sciences and Society Karolinska Institutet, Stockholm, Sweden.
    Skogby, Sandra
    Institute of Health and Care Science, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Department of Paediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
    Fernlund, Eva
    Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden; Division of Paediatrics, Crown Princess Victoria Childreńs Hospital, Linköping University Hospital, Linköping, Sweden; Department of Clinical Sciences Lund, Lund University, Skåne University Hospital, paediatric Cardiology, Lund, Sweden.
    Fadl, Shalan
    Department of Paediatrics, Örebro University Hospital, Örebro, Sweden.
    Rydberg, Annika
    Department of Clinical Sciences, Umeå University, Umeå, Sweden.
    Hanseus, Katarina
    Children's Heart Centre, Skåne University Hospital Lund, Lund, Sweden.
    Kazamia, Kalliopi
    Children's Heart Centre Stockholm-Uppsala, Karolinska University Hospital and Akademiska University Hospital, Sweden; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.
    Moons, Philip
    Institute of Health and Care Science, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; KU Leuven, Department of Public Health and Primary Care, Leuven, Belgium; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
    Effectiveness of the STEPSTONES Transition Program for Adolescents With Congenital Heart Disease: A Randomized Controlled Trial2023Ingår i: Journal of Adolescent Health, ISSN 1054-139X, E-ISSN 1879-1972Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: Adolescents with congenital heart disease transition from childhood to adulthood and transfer from pediatric-oriented to adult-oriented care. High-level empirical evidence on the effectiveness of transitional care is scarce. This study investigated the empowering effect (primary outcome) of a structured person-centered transition program for adolescents with congenital heart disease and studied its effectiveness on transition readiness, patient-reported health, quality of life, health behaviors, disease-related knowledge, and parental outcomes e.g., parental uncertainty, readiness for transition as perceived by the parents (secondary outcomes). Methods: The STEPSTONES-trial comprised a hybrid experimental design whereby a randomized controlled trial was embedded in a longitudinal observational study. The trial was conducted in seven centers in Sweden. Two centers were allocated to the randomized controlled trial-arm, randomizing participants to intervention or control group. The other five centers were intervention-naïve centers and served as contamination check control group. Outcomes were measured at the age of 16 years (baseline), 17 years, and 18.5 years. Results: The change in empowerment from 16 years to 18.5 years differed significantly between the intervention group and control group (mean difference = 3.44; 95% confidence interval = 0.27–6.65; p = .036) in favor of intervention group. For the secondary outcomes, significant differences in change over time were found in parental involvement (p = .008), disease-related knowledge (p = .0002), and satisfaction with physical appearance (p = .039). No differences in primary or secondary outcomes were detected between the control group and contamination check control group, indicating that there was no contamination in the control group. Discussion: The STEPSTONES transition program was effective in increasing patient empowerment, reducing parental involvement, improving satisfaction with physical appearance, and increasing disease-related knowledge. © 2023 Society for Adolescent Health and Medicine

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  • 3.
    Acuña Mora, Mariela
    et al.
    Högskolan i Borås, Akademin för vård, arbetsliv och välfärd. Faculty of Caring Science, Work Life and Social Welfare, University of Borås , Borås 501 90 , Sweden;Institute of Health and Care Sciences, University of Gothenburg , Gothenburg 405 30 , Sweden.
    Klompstra, Leonie
    Department of Health, Medicine and Caring Sciences, Linköping University , Linköping 581 83 , Sweden.
    Borregaard, Britt
    Department of Cardiology, Odense University Hospital , Odense C 5000 , Denmark;Department of Clinical Research, University of Southern Denmark , Odense C 5000 , Denmark;Department of Cardiac, Thoracic and Vascular Surgery, Odense University Hospital , Odense C 5000 , Denmark.
    The why and the how of communicating research2023Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 22, nr 3, s. e16-e18Artikel i tidskrift (Övrigt vetenskapligt)
  • 4.
    Burström, Åsa
    et al.
    Astrid Lindgren Children's Hospital, and Department of Neurobiology, Care Science, and Society, Karolinska Institutet, Stockholm, Sweden.
    Acuña Mora, Mariela
    Högskolan i Borås, Akademin för vård, arbetsliv och välfärd.
    Sparud-Lundin, Carina
    Institute of Health and Care Science, University of Gothenburg, Sweden.
    Moons, Philip
    Institute of Health and Care Science, University of Gothenburg, and KU Leuven, Department of Public Health and Primary Care, Leuven, Belgium.
    Bratt, Ewa-Lena
    Institute of Health and Care Science, University of Gothenburg, and The Queen Silvia Children's Hospital, Gothenburg, Sweden.
    Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks?2022Ingår i: Journal of Cardiovascular Nursing, ISSN 0889-4655, E-ISSN 1550-5049, Vol. 37, nr 6, s. E172-E180Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background

    Studies show that adolescents with congenital heart disease (CHD) lack knowledge about reproductive health in relation to their CHD.

    Objective

    The aims were to investigate (i) the proportion of adolescents with CHD receiving information about reproductive health, (ii) the level of reproductive health knowledge in adolescents with CHD, and (iii) potential correlates for receiving information about reproductive health.

    Methods

    A total of 202 adolescents aged 14 to 18 years (mean age 15.7 ± 1.1 years) with CHD completed the Knowledge Scale for Adults with Congenitally Malformed Hearts and were asked if they had received information about contraception and pregnancies or if this would be of interest.

    Results

    Few adolescents could recall receiving information about contraceptives (5%) and pregnancies (15%). Furthermore, only 24% adolescents wanted information about contraceptives, and 42% of the female adolescents wanted information about pregnancies. There was a higher probability of male adolescents wanting information about contraceptives. Knowledge about reproductive health varied regarding knowledge about why they had been born with CHD (68%), knowledge about the hereditary nature of the CHD (48%), and if sexual activity could worsen their CHD (70%). However, few (11%) had knowledge about the elevated risk of having a child with CHD. Age was associated with a higher probability of having knowledge about the risks of having a child with CHD.

    Conclusions

    The low number of adolescents receiving information about contraceptives and pregnancies may have implications for future health and family planning. Future research is needed to identify and evaluate successful communication strategies that help to identify adolescents' preferences on how to approach this sensitive topic.

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  • 5.
    Acuña Mora, Mariela
    et al.
    Högskolan i Borås, Akademin för vård, arbetsliv och välfärd. Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
    Raymaekers, Koen
    School Psychology and Development in Context, Leuven, KU Belgium; Research Foundation Flanders (FWO), Brussels, Belgium.
    Van Bulck, Liesbet
    Research Foundation Flanders (FWO), Brussels, Belgium; Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 35, B-3000 Leuven, Box 7001, Belgium.
    Goossens, Eva
    Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 35, B-3000 Leuven, Box 7001, Belgium; Faculty of Medicine and Health Sciences, Centre for Research and Innovation in Care, Division of Nursing and Midwifery, University of Antwerp, Antwerp, Belgium.
    Luyckx, Koen
    School Psychology and Development in Context, Leuven, KU Belgium; UNIBS, University of the Free State, Bloemfontein, South Africa.
    Kovacs, Adrienne H.
    Knight Cardiovascular Institute, Oregon Health & Science University, Portland, OR USA.
    Andresen, Brith
    Department of Cardiothoracic Surgery, Department of Cardiology, Oslo University Hospital, Oslo, Norway.
    Moon, Ju Ryoung
    Department of Nursing, Samsung Medical Center, Seoul, South Korea.
    Van De Bruaene, Alexander
    Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium; Department of Cardiovascular Sciences, KU Leuven, Leuven, Belgium.
    Rassart, Jessica
    School Psychology and Development in Context, Leuven, KU Belgium; Research Foundation Flanders (FWO), Brussels, Belgium.
    Moons, Philip
    Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 35, B-3000 Leuven, Box 7001, Belgium; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
    Gothenburg Empowerment Scale (GES): psychometric properties and measurement invariance in adults with congenital heart disease from Belgium, Norway and South Korea2022Ingår i: Health and Quality of Life Outcomes, ISSN 1477-7525, E-ISSN 1477-7525, Vol. 20, nr 1, artikel-id 145Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background

    Patient empowerment is associated with improvements in different patient-reported and clinical outcomes. However, despite being widely researched, high quality and theoretically substantiated disease-generic measures of patient empowerment are lacking. The few good instruments that are available have not reported important psychometric properties, including measurement invariance. The aim of this study was to assess the psychometric properties of the 15-item Gothenburg Empowerment Scale (GES), with a particular focus on measurement invariance of the GES across individuals from three countries.

    Methods

    Adults with congenital heart disease from Belgium, Norway and South Korea completed the GES and other patient-reported outcomes as part of an international, cross-sectional, descriptive study called APPROACH-IS II. The scale’s content (missing data) and factorial validity (confirmatory factor analyses), measurement invariance (multi-group confirmatory factor analyses), responsiveness (floor and ceiling effects) and reliability (internal consistency) were assessed.

    Results

    Content validity, responsiveness and reliability were confirmed. Nonetheless, metric but not scalar measurement invariance was supported when including the three countries, possibly because the scale performed differently in the sample from South Korea. A second set of analyses supported partial scalar invariance for a sample that was limited to Norway and Belgium.

    Conclusion

    Our study offers preliminary evidence that GES is a valid and reliable measure of patient empowerment in adults with congenital heart disease. However, cross-country comparisons must be made with caution, given the scale did not perform equivalently across the three countries.

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  • 6.
    Acuña Mora, Mariela
    et al.
    Högskolan i Borås, Akademin för vård, arbetsliv och välfärd. Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
    Sparud-Lundin, Carina
    Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
    Fernlund, Eva
    Division of Pediatrics, Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden; Crown Princess Victoria Children’s Hospital, Linköping University Hospital, Linköping, Sweden.
    Fadl, Shalan
    Department of Children and Young Adults, University Hospital Örebro, Örebro, Sweden.
    Kalliopi, Kazamia
    Department of Women’s and Children’s Health, Karolinska Institute, Stockholm, Sweden.
    Rydberg, Annika
    Department of Clinical Sciences, Umeå University, Umeå, Sweden.
    Burström, Åsa
    Karolinska Institute, Department of Neurobiology, Care Sciences and Society, Stockholm, Sweden.
    Hanseus, Katarina
    Children’s Heart Center, Skåne University Hospital Lund, Lund, Sweden.
    Moons, Philip
    Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium. Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
    Bratt, Ewa-Lena
    Department of Pediatric Cardiology, The Queen Silvia Children’s Hospital, Gothenburg, Sweden.
    The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?2022Ingår i: PLOS ONE, E-ISSN 1932-6203, Vol. 17, nr 11, artikel-id e0277267Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background

    Theoretical literature and cross-sectional studies suggest empowerment is associated with other patient-reported outcomes (PROs). However, it is not known if patient empowerment is leading to improvements in other PROs or vice versa.

     

    Aims

    The present study aimed to examine the direction of effects between patient empowerment and PROs in young persons with congenital heart disease (CHD).

     

    Methods

    As part of the STEPSTONES-CHD trial, adolescents with CHD from seven pediatric cardiology centers in Sweden were included in a longitudinal observational study (n = 132). Data were collected when patients were 16 (T0), 17 (T1) and 18 ½ years old (T2). The Gothenburg Young Persons Empowerment Scale (GYPES) was used to measure patient empowerment. Random intercepts cross-lagged panel models between patient empowerment and PROs (communication skills; patient-reported health; quality of life; and transition readiness) were undertaken.

     

    Results

    We found a significant cross-lagged effect of transition readiness over patient empowerment between T1 and T2, signifying that a higher level of transition readiness predicted a higher level of patient empowerment. No other significant cross-lagged relationships were found.

     

    Conclusion

    Feeling confident before the transition to adult care is necessary before young persons with CHD can feel in control to manage their health and their lives. Clinicians interested in improving patient empowerment during the transitional period should consider targeting transition readiness.

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  • 7.
    Acuña Mora, Mariela
    et al.
    Högskolan i Borås, Akademin för vård, arbetsliv och välfärd. Institute of Health and Care Sciences, University of Gothenburg, Sweden.
    Sparud-Lundin, C.
    Institute of Health and Care Sciences, University of Gothenburg, Sweden.
    Moons, P.
    Institute of Health and Care Sciences, University of Gothenburg, Sweden; Department of Public Health and Primary Care, KU Leuven, Belgium; Department of Paediatrics and Child Health, University of Cape Town, South Africa.
    Bratt, E. -L
    Institute of Health and Care Sciences, University of Gothenburg, Sweden; Department of Pediatric Cardiology, The Queen Silvia Children’s Hospital, Sweden.
    Definitions, instruments and correlates of patient empowerment: A descriptive review2021Ingår i: Patient Education and Counseling, ISSN 0738-3991, E-ISSN 1873-5134Artikel, forskningsöversikt (Refereegranskat)
    Abstract [en]

    Objective: This review aimed to: (i) inventory the definitions and measurements of patient empowerment in healthcare literature; (ii) appraise the conceptual and methodological rigor of included studies; and (iii) identify correlates of patient empowerment in persons with chronic conditions.

    Methods: Four databases were searched to identify articles measuring patient empowerment in persons with chronic conditions, used a quantitative design and provided evidence on correlates of patient empowerment. Seventy-six articles were included and analyzed by descriptive statistics and summative content analysis.

    Results: The articles used a range of definitions (n = 35) and instruments (n = 38), evaluating a range of correlates in four categories: sociodemographic characteristics, clinical outcomes, patient-reported outcomes and patient-reported experiences. The most frequent associations were between patient empowerment and age (n = 21), sex (n = 15), educational level (n = 15) and quality of life (n = 18). However, they were not always significant.

    Conclusion: The broad variation of definitions and instruments highlights the lack of consensus on how to interpret and measure patient empowerment. Although several covariates have been evaluated, there are few studies assess the same relationships.

    Practice implications: Consensus on a definition and measurement of patient empowerment is needed to improve the quality of future research and to provide a more cohesive body of knowledge. 

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  • 8.
    Acuña Mora, Mariela
    et al.
    Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; KU Leuven Department of Public Health and Primary Care, Leuven, Belgium.
    Saarijärvi, Markus
    Sparud-Lundin, Carina
    Moons, Philip
    Bratt, Ewa-Lena
    Empowering Young Persons with Congenital Heart Disease: Using Intervention Mapping to Develop a Transition Program - The STEPSTONES Project2020Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 50, s. e8-e17Artikel i tidskrift (Refereegranskat)
  • 9.
    Acuña Mora, Mariela
    et al.
    Institute of Health and Care Sciences, University of Gothenburg, Sweden;KU Leuven Department of Public Health and Primary Care, Belgium.
    Sparud-Lundin, Carina
    Institute of Health and Care Sciences, University of Gothenburg, Sweden.
    Burström, Åsa
    Institution for Women’s and Children’s Health, Karolinska Institute, Sweden;Department of Paediatric Cardiology, Astrid Lindgren Children’s Hospital, Sweden.
    Hanseus, Katarina
    Department of Pediatric Cardiology, Skåne University Hospital, Sweden.
    Rydberg, Annika
    Department of Clinical Sciences, Pediatrics, Umeå University, Sweden.
    Moons, Philip
    Institute of Health and Care Sciences, University of Gothenburg, Sweden;KU Leuven Department of Public Health and Primary Care, Belgium;Department of Paediatrics and Child Health, University of Cape Town, South Africa.
    Bratt, Ewa-Lena
    Institute of Health and Care Sciences, University of Gothenburg, Sweden;Department of Pediatric Cardiology, The Queen Silvia Children’s Hospital, Sweden.
    Patient empowerment and its correlates in young persons with congenital heart disease2019Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 18, nr 5, s. 389-398Artikel i tidskrift (Refereegranskat)
  • 10.
    Burström, Åsa
    et al.
    Karolinska Institutet, Stockholm, Sweden;Astrid Lindgren Children’s Hospital, Stockholm, Sweden.
    Acuña Mora, Mariela
    University of Gothenburg, Sweden;KU Leuven, Belgium.
    Öjmyr-Joelsson, Maria
    Karolinska Institutet, Stockholm, Sweden;Astrid Lindgren Children’s Hospital, Stockholm, Sweden.
    Sparud-Lundin, Carina
    University of Gothenburg, Sweden.
    Rydberg, Annika
    Umeå University, Sweden.
    Hanseus, Katarina
    Skåne University Hospital, Lund, Sweden.
    Frenckner, Björn
    Karolinska Institutet, Stockholm, Sweden;Astrid Lindgren Children’s Hospital, Stockholm, Sweden.
    Nisell, Margret
    Karolinska Institutet, Stockholm, Sweden;The Red Cross University College, Stockholm, Sweden.
    Moons, Philip
    University of Gothenburg, Sweden;KU Leuven, Belgium.
    Bratt, Ewa-Lena
    University of Gothenburg, Sweden;The Queen Silvia Children’s Hospital, Gothenburg, Sweden.
    Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents2019Ingår i: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 25, nr 3, s. 447-468Artikel i tidskrift (Refereegranskat)
  • 11.
    Acuña Mora, Mariela
    et al.
    Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; KU Leuven Department of Public Health and Primary Care, Leuven, Belgium.
    Saarijärvi, Markus
    Moons, Philip
    Sparud-Lundin, Carina
    Bratt, Ewa-Lena
    Goossens, Eva
    The Scope of Research on Transfer and Transition in Young Persons With Chronic Conditions2019Ingår i: Journal of Adolescent Health, ISSN 1054-139X, E-ISSN 1879-1972, Vol. 65, nr 5, s. 581-589Artikel i tidskrift (Refereegranskat)
  • 12.
    Burström, Åsa
    et al.
    Institution for Women's and Children's Health Karolinska Institutet Stockholm Sweden;Department of Pediatric Cardiology Astrid Lindgren Children's Hospital Stockholm Sweden.
    Acuña Mora, Mariela
    Institute of Health and Care Sciences University of Gothenburg Gothenburg Sweden;KU Leuven Department of Public Health and Primary Care Leuven Belgium.
    Öjmyr‐Joelsson, Maria
    Institution for Women's and Children's Health Karolinska Institutet Stockholm Sweden;Department of Pediatric Surgery Astrid Lindgren Children's Hospital Stockholm Sweden.
    Sparud‐Lundin, Carina
    Institute of Health and Care Sciences University of Gothenburg Gothenburg Sweden.
    Rydberg, Annika
    Department of Clinical Sciences, Pediatrics Umeå University Umeå Sweden.
    Hanseus, Katarina
    Department of Pediatric Cardiology Skåne University Hospital Lund Sweden.
    Frenckner, Björn
    Institution for Women's and Children's Health Karolinska Institutet Stockholm Sweden;Department of Pediatric Surgery Astrid Lindgren Children's Hospital Stockholm Sweden.
    Nisell, Margret
    Institution for Women's and Children's Health Karolinska Institutet Stockholm Sweden;The Red Cross University College Stockholm Sweden.
    Moons, Philip
    Institute of Health and Care Sciences University of Gothenburg Gothenburg Sweden;KU Leuven Department of Public Health and Primary Care Leuven Belgium.
    Bratt, Ewa‐Lena
    Institute of Health and Care Sciences University of Gothenburg Gothenburg Sweden;Department of Pediatric Cardiology The Queen Silvia Children's Hospital Gothenburg Sweden.
    Parental uncertainty about transferring their adolescent with congenital heart disease to adult care2018Ingår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 75, nr 2, s. 380-387Artikel i tidskrift (Refereegranskat)
  • 13.
    Acuña Mora, Mariela
    et al.
    Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.
    Luyckx, Koen
    Sparud-Lundin, Carina
    Peeters, Mariëlle
    van Staa, AnneLoes
    Sattoe, Jane
    Bratt, Ewa-Lena
    Moons, Philip
    Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale (GYPES)2018Ingår i: PLOS ONE, E-ISSN 1932-6203, Vol. 13, nr 7, artikel-id e0201007Artikel i tidskrift (Refereegranskat)
  • 14.
    Acuña Mora, Mariela
    Högskolan i Borås, Akademin för vård, arbetsliv och välfärd.
    Theoretical and clinical challenges when developing and evaluating complex interventions in health2018Konferensbidrag (Övrigt vetenskapligt)
  • 15.
    Acuña Mora, Mariela
    et al.
    Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; KU Leuven Department of Public Health and Primary Care, Leuven, Belgium; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
    Sparud-Lundin, Carina
    Bratt, Ewa-Lena
    Moons, Philip
    Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES project)2017Ingår i: BMJ Open, E-ISSN 2044-6055, Vol. 7, nr 4, s. e014593-e014593Artikel i tidskrift (Refereegranskat)
  • 16.
    Acuña Mora, Mariela
    et al.
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, Gothenburg, SE-405 30, Sweden; Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Kapucijnenvoer 35, box 7001, 3000, Leuven, Belgium.
    Moons, Philip
    Sparud-Lundin, Carina
    Bratt, Ewa-Lena
    Goossens, Eva
    Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping review2016Ingår i: Systematic Reviews, E-ISSN 2046-4053, Vol. 5, nr 1, artikel-id 166Artikel i tidskrift (Refereegranskat)
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