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  • 1. Dahlborg-Lyckhage, Elisabeth
    et al.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Living in Liminality: Being Simultaneously Visible and Invisible: Caregivers' Narratives of Palliative Care2013In: Journal of Social Work in End-of-life & Palliative Care, ISSN 1552-4256, Vol. 9, no 4, 272-288 p.Article in journal (Refereed)
    Abstract [en]

    Palliative care is an integral part of care and takes place in many settings—including the home, special accommodations, and hospitals. However, research shows that palliative care often ends with a death in the hospital due to the heavy burden on the primary caregiver. This study explores the meaning of being the primary caregiver of a close one who is terminally ill and is based on qualitative interviews with six primary caregivers of a terminally ill individual at home. The findings are discussed in the light of the theoretical concepts of liminality, lived body, and power. A potential impending risk exists of being abandoned when one is the primary caregiver to a close one who is terminally ill. This situation calls for professional caregivers to take responsibility and to respond to these, often unspoken, needs. This is particularly important concerning bodily care and the medical treatment regimen. In addition, when friends and relatives are absent, there is an ethical demand on professional caregivers to compensate for this lack and to compensate for this need. Palliative home care demands care that is person-centered—including the individual’s history, family and loved ones, and individual strengths and weaknesses.

  • 2.
    Engwall, Marie
    et al.
    University of Borås, School of Health Science.
    Bergbom, Ingegerd
    University of Borås, School of Health Science.
    Fridh, Isabell
    University of Borås, School of Health Science. University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Let there be light and darkness: findings from a prestudy concerning cycled light in the intensive care unit environment.2014In: Critical Care Nursing Quarterly, ISSN 0887-9303, E-ISSN 1550-5111, Vol. 37, no 3, 273-298 p.Article in journal (Refereed)
    Abstract [en]

    The present study reports findings concerning light in an intensive care unit setting presented from 3 aspects, giving a wide view. The first part is a systematic review of intervention studies concerning cycled light compared with dim light/noncycled light. The findings showed that cycled light may be beneficial to preterm infant health. Second, a lighting intervention in the intensive care unit is presented, comparing and assessing experience of this lighting environment with that of an ordinary room. Significant differences were shown in hedonic tone, favoring the intervention environment. In the third part, measured illuminance, luminance, and irradiance values achieved in the lighting intervention room and ordinary room lighting are reported.

  • 3.
    Engwall, Marie
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Fridh, Isabell
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Johansson, Lotta
    Bergbom, Ingegerd
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Lindahl, Berit
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Lighting, sleep and circadian rhythm: An intervention study in the intensive care unit.2015In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 31, no 6, 325-335 p.Article in journal (Refereed)
    Abstract [en]

    Patients in an intensive care unit (ICU) may risk disruption of their circadian rhythm. In an intervention research project a cycled lighting system was set up in an ICU room to support patients' circadian rhythm. Part I aimed to compare experiences of the lighting environment in two rooms with different lighting environments by lighting experiences questionnaire. The results indicated differences in advantage for the patients in the intervention room (n=48), in perception of daytime brightness (p=0.004). In nighttime, greater lighting variation (p=0.005) was found in the ordinary room (n=52). Part II aimed to describe experiences of lighting in the room equipped with the cycled lighting environment. Patients (n=19) were interviewed and the results were presented in categories: "A dynamic lighting environment", "Impact of lighting on patients' sleep", "The impact of lighting/lights on circadian rhythm" and "The lighting calms". Most had experiences from sleep disorders and half had nightmares/sights and circadian rhythm disruption. Nearly all were pleased with the cycled lighting environment, which together with daylight supported their circadian rhythm. In night's actual lighting levels helped patients and staff to connect which engendered feelings of calm.

  • 4.
    Engwall, Marie
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare. Sahlgrenska University Hospital.
    Fridh, Isabell
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Jutengren, Göran
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Bergbom, Ingegerd
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare. Sahlgrenska University Hospital.
    Sterner, Anders
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Lindahl, Berit
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare. Sahlgrenska University Hospital.
    The effect of cycled lighting in the intensive care unit on sleep, activity and physiological parameters: A pilot study.2017In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 41, 26-32 p., S0964-3397(17)30032-0Article in journal (Refereed)
    Abstract [en]

    Patients in intensive care suffer from severe illnesses or injuries and from symptoms related to care and treatments. Environmental factors, such as lighting at night, can disturb patients' circadian rhythms. The aim was to investigate whether patients displayed circadian rhythms and whether a cycled lighting intervention would impact it. In this pilot study (N=60), a cycled lighting intervention in a two-bed patient room was conducted. An ordinary hospital room functioned as the control. Patient activity, heart rate, mean arterial pressure and body temperature were recorded. All data were collected during the patients' final 24h in the intensive care unit. There was a significant difference between day and night patient activity within but not between conditions. Heart rates differed between day and night significantly for patients in the ordinary room but not in the intervention room or between conditions. Body temperature was lowest at night for all patients with no significant difference between conditions. Patients in both conditions had a natural circadian rhythm; and the cycled lighting intervention showed no significant impact. As the sample size was small, a larger repeated measures study should be conducted to determine if other types of lighting or environmental factors can impact patients' well-being.

  • 5.
    Eriksson, Thomas
    et al.
    Sahlgrenska University Hospital, University of Gothenburg.
    Bergbom, I
    Sahlgrenska Academy, University of Gothenburg.
    Lindahl, Berit
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    The experiences of patients and their families of visiting during whilst in an intensive care unit: A hermeneutic interview study2011In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 27, no 2, 60-67 p.Article in journal (Refereed)
    Abstract [en]

    Aim The aim of this study was to interpret and understand the meanings of the lived experiences of visiting of patients in an ICU and their families. Method The research design was hermeneutic, based on interviews. This study includes 12 interviews with seven patients and five relatives who had been in an ICU. The interview text was interpreted in a Gadamerian manner as different plays with actors and plots. Findings Patients’ narratives could be divided into two parts; recall of real life and unreal life experiences, the unreal being more common. Relatives’ narratives are described as being on stage and being backstage, i.e. in the room with the patient and outside it. Conclusion The final interpretation elucidated the experience of visiting as the sudden shift between being present in real life vs. being present in the real life of unreality. It was a process whereby the patient and the family build a new understanding of life that creates a new form of interplay within the family. The pre-critical illness life is no longer there – a new life has begun. To support patients and their families in this process of change a family-centred care perspective is necessary.

  • 6.
    Eriksson, Thomas
    et al.
    University of Borås, School of Health Science.
    Bergbom, Ingegerd
    Lindahl, Berit
    University of Borås, School of Health Science.
    Hermeneutiska observationsstudier: från ett metodologiskt perspektiv.2013Conference paper (Refereed)
    Abstract [sv]

    Sedan några år har det varit en pågående diskussion om hur observationer kan användas i den vårdvetenskapliga forskningen, när det gäller att samla in kvalitativa forskningsdata och att tolka dessa data med hjälp av hermeneutik. Syftet med denna artikel var att reflektera, argumentera och bidra med ett innehåll i en pågående diskurs som rör utveckling av hermeneutisk tolkning av observationer som vetenskaplig metod via ett exempel genomfört inom intensivvård. I den hermeneutiska observationsstudie som används för att belysa metoden ligger forskningens fokus på att fånga det vårdande i besöken av patienter som vårdas på intensivvårdsavdelning. Den främsta anledningen till varför det finns ett behov av att utveckla och använda observation som datainsamling i det kliniska fältet är behovet av att få insikt i och synliggöra vad vårdandets innersta kärna kan innebära. Men det innefattar även kunskapsbildning om det som innebär att kunna se och vittna om vad som händer.

  • 7.
    Eriksson, Thomas
    et al.
    University of Borås, School of Health Science.
    Bergbom, Ingegerd
    Lindahl, Berit
    University of Borås, School of Health Science.
    The visiting situation in an ICU: an observational hermeneutic study –oral presentation2011Conference paper (Refereed)
    Abstract [en]

    Aim: The aim was to interpret the interplay between critically ill patients and their next of kin in an ICU to understand the visiting situation. Method: A hermeneutic research design with non-participant observation was chosen as the data collection method. Ten observations of 10 patients and 24 loved ones over a 20 hour period were conducted. The text describing the observations of the interplay was interpreted in accordance with Gadamer. Data were analysed by considering the text as a play with scenes, actors and plots. Results: The interpretation of the scenes revealed two themes describing the patient’s interplay and six themes describing the next of kin’s interplay. The understanding of the plot concerns people who had entered a situation where normal everyday life was disconnected. The path from health to illness was a totally unfamiliar environment and perception of life, where the body constituted a new and unknown world. As a result of the fact that the patients were unable to use their bodies in the usual way, which sends different signals to their loved ones, who in turn have difficulty deciding how to respond. Both parties become trapped or locked out by their own bodies. Conclusion: A hindrance to the interplay could be the room, which was designed for medical and technical use and thus did not promote healing. The professionals were crucial for interpreting the signals from both patients and next of kin, as well as for finding caring strategies, such as physical contact, that promote interplay, which in turn create a caring and healing atmosphere.

  • 8.
    Eriksson, Thomas
    et al.
    University of Borås, School of Health Science.
    Egerod, Ingrid
    Granberg Axell, Anetth
    Storli, Sissel Lisa
    Lindahl, Berit
    University of Borås, School of Health Science.
    Ågård, Anne Sophie
    Henricson, Maria
    Harden, Sue
    Danielsen, Astrid
    The Nordic Association for Intensive Care Nursing Research (NOFI)2011Conference paper (Other academic)
    Abstract [en]

    Nordic nursing studies have a strong tradition within the qualitative approach. This approach has been applied to explore the lived experience of critical illness and intensive care therapy from the perspectives of the patient and the patient’s family. In 2003, the Nordic Association for Intensive Care Nursing Research (NOFI) was established by nursing scholars from Denmark, Norway, and Sweden. The purpose of NOFI was to encourage research in intensive care nursing in the Nordic countries, to establish a network of intensive care nursing scholars, to exchange research experience and research outcomes among the Nordic research communities, and to increase the visibility of research in intensive care nursing in the Nordic countries. Although the focus was on nursing research, an interdisciplinary approach has also been encouraged with joint research and conference activities. NOFI have arranged biannual conferences for members and other individuals interested in the activities of the network. The venue has rotated among the tree Nordic countries, and the themes of the meetings have been: Intensive Care Unit (ICU) environment and acoustics, relatives of ICU-patients, ways of knowing, sedation, ethics, patient diaries, multimodal interventions, research designs, ICU-delirium, psychometrics, burns, and mechanical ventilation. Other activities have been presentations of newly completed PhD-studies in the Nordic countries. Since 2006, nursing scholars from the three Scandinavian countries have collaborated on a study of diaries written for ICU patients (patient diaries). The three countries share common values, culture and language, which has facilitated the exchange of ideas among the Nordic nurses. Intensive care nursing is a young domain of research. We still need to encourage more scholars within this area to increase our knowledge base, improve the ICU-experience and formalize rehabilitation of post-ICU patients. Intensive care is a collaborative practice and future research should reflect the interdisciplinary aspect of the field.

  • 9. Eriksson, Thomas
    et al.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Bergbom, I
    Visits in an intensive care unit: an observational hermeneutic study2010In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 26, no 1, 51-57 p.Article in journal (Refereed)
    Abstract [en]

    Aim The aim was to interpret the interplay between critically ill patients and their next of kin in an ICU and to disclose a deeper understanding of the visiting situation. Method A hermeneutic research design with non-participant observation was chosen as the data collection method. Ten observations of 10 patients and 24 loved ones over a 20-h period were conducted. The text describing the observations of the interplay was interpreted in accordance with Gadamer's thoughts. Data were analysed by considering the text as a play with scenes, actors and plots. Findings Due to their medical condition the patients were unable to use their bodies in the usual way, which sends different signals to their loved ones, who in turn have difficulty deciding how to respond. Both parties become, in a manner of speaking, trapped or locked out by their own bodies. Conclusion The physical environment became a hindrance to the interplay as it was designed for medical and technical use and thus did not promote healing. The professionals are important for interpreting the signals from both patients and next of kin, as well as for finding caring strategies, such as physical contact that promote interplay, which in turn strengthens connectedness.

  • 10.
    Israelsson-Skogsberg, Åsa
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Lindahl, Berit
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Personal care assistants' experiences of caring for people on home mechanical ventilation.2016In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed)
    Abstract [en]

    AIM: The aim of this study was to describe personal care assistants' (PCA) experiences of working with a ventilator-assisted person at home. METHODS: Data were collected from fifteen audiotaped semistructured interviews with PCAs supporting a child or adult using home mechanical ventilation (HMV). Thirteen women and two men participated; their working experience with HMV users ranged from one to 17 years (median 6 years). Data were subjected to qualitative content analysis in an inductive and interpretive manner. FINDINGS: Five categories emerged from the data: Being part of a complex work situation; Taking on a multidimensional responsibility; Caring carried out in someone's home; Creating boundaries in an environment with indistinct limits; and Being close to another's body and soul. CONCLUSIONS: The participants felt very close to the person they worked with, both physically and emotionally. They had a great responsibility and therefore a commensurate need for support, guidance and a well-functioning organisation around the HMV user. There is international consensus that advanced home care will continue to expand and personal care assistance is key in this development. We suggest that one way to move forward for PCAs working with HMV users is to create multiprofessional teams led by a key-person who coordinates the individual needs. More research is needed within this area from a broad perspective including the HMV-assisted persons, relatives, personal care assistants and management organisations.

  • 11. Johansson, Kristina
    et al.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Moving between rooms--moving between life and death: nurses' experiences of caring for terminally ill patients in hospitals2012In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 21, no 13/14, 2034-2043 p.Article in journal (Refereed)
    Abstract [en]

    Aim. This study describes the meanings of generalist registered nurses' experiences of caring for palliative care patients on general wards in hospitals. Background. Earlier research shows that work with patients in palliative care is demanding. More research concerning palliative care is undertaken in oncological care, in hospice and in home-care settings than in general wards. It is therefore important to examine the palliative care in the context of acute-care settings to discover more about this phenomenon, to understand the experiences of nurses in this situation and to develop patient care. Design. Qualitative, descriptive and interpretive study. Method. Eight registered nurses in two different hospitals in Sweden were interviewed. The patients on these wards suffered from surgical and medical conditions, i.e. both curative and palliative care were administered. The interviews were analysed using a phenomenological hermeneutical approach inspired by Ricoeur's philosophy. Results. The registered nurses' experiences are presented as seven themes and a comprehensive, interpreted whole. This latter revealed the significance of contrasts, contradictions and movement between the material and psychological experiences of the room and nursing care in this care context. Conclusions. The registered nurses say that something momentous occurred during the care process and they showed a strong determination and commitment to being part of the ending of the patient's life circle, despite the situation often being one of stress. Relevance to clinical practice. The findings highlight the need for various forms of support for the nurses to meet their need for new and updated knowledge and support in existential matters. This may promote a better quality of care and confirm the nurses in their caring practice. Moreover, there is a need to introduce the hospice philosophy into acute-care settings in hospitals.

  • 12. Johansson, Lotta
    et al.
    Bergbom, Ingegerd
    Lindahl, Berit
    University of Borås, School of Health Science.
    Meanings of Being Critically Ill in a Sound-Intensive ICU Patient Room: A Phenomenological Hermeneutical Study2012In: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, no 6, 108-116 p.Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to illuminate the meanings of being critically ill in a sound-intensive ICU patient room, as disclosed through patients’ narratives. Patient rooms in ICUs are filled with loud activity and studies have revealed sound levels comparable to those of a busy road above the patient’s head. There is a risk that the sound or noise is disturbing and at worst a major problem for the patient, but there is a lack of knowledge concerning the patients’ own experiences. Thirteen patients were asked to narrate their experiences of the sound environment in ICU patient rooms. The interviews were analyzed using a phenomenological- hermeneutical method inspired by the philosophy of Ricoeur. Six themes emerged from the analysis. Conclusion: The meanings of being a patient in a sound- intensive environment were interpreted as never knowing what to expect next regarding noise, but also of being situated in the middle of an uncontrollable barrage of noise, unable to take cover or disappear. This condition is not to be seen as static; for some patients there is movement and change over time. The meanings indicate that the unpredictable shifts between silence and disturbing sounds stress the critically ill patient and impede sleep and recovery. Our findings indicate the need to reduce disturbing and unexpected sounds and noise around critically ill patients in high-tech environments in order to facilitate wellbeing, sleep and recovery. Nurses have a vital role in developing such an environment.

  • 13. Johansson, Lotta
    et al.
    Bergbom, Ingegerd
    Persson Waye, Kerstin
    Ryherd, Erica
    Lindahl, Berit
    University of Borås, School of Health Science.
    The sound environment in an ICU patient room--A content analysis of sound levels and patient experiences2012In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 28, no 5, 269-279 p.Article in journal (Refereed)
    Abstract [en]

    This study had two aims: first to describe, using both descriptive statistics and quantitative content analysis, the noise environment in an ICU patient room over one day, a patient's physical status during the same day and early signs of ICU delirium; second, to describe, using qualitative content analysis, patients' recall of the noise environment in the ICU patient room. The final study group comprised 13 patients. General patient health status data, ICU delirium observations and sound-level data were collected for each patient over a 24-hour period. Finally, interviews were conducted following discharge from the ICU. The sound levels in the patient room were higher than desirable and the LAF max levels exceed 55dB 70-90% of the time. Most patients remembered some sounds from their stay in the ICU and whilst many were aware of the sounds they were not disturbing to them. However, some also experienced feelings of fear related to sounds emanating from treatments and investigations of the patient beside them. In this small sample, no statistical connection between early signs of ICU delirium and high sound levels was seen, but more research will be needed to clarify whether or not a correlation does exist between these two factors.

  • 14. Karlsson, Veronika
    et al.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Bergbom, Ingegerd
    Patients' statements and experiences concerning receiving mechanical ventilation: a prospective video-recorded study2012In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 19, no 3, 247-258 p.Article in journal (Refereed)
    Abstract [en]

    Patients' statements and experiences concerning receiving mechanical ventilation: a prospective video-recorded study Prospective studies using video-recordings of patients during mechanical ventilator treatment (MVT) while conscious have not previously been published. The aim was to describe patients' statements, communication and facial expressions during a video-recorded interview while undergoing MVT. Content analysis and hermeneutics inspired by the philosophy of Gadamer were used. The patients experienced almost constant difficulties in breathing and lost their voice. The most common types of communication techniques patients used were nodding or shaking the head. Their expressions were interpreted as stiffened facial expression, tense body position and feelings of sadness and sorrow. Nursing care for patients' conscious during MVT is challenging as it creates new demands regarding the content of the care provided. In caring for patients undergoing MVT while conscious, establishing a caring relationship, making patients feel safe and helping them to communicate seem to be most important for alleviating discomfort and instilling hope.

  • 15.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Att vara beroende av ventilator: patienters skildringar över tid2007Conference paper (Refereed)
  • 16.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Att vårda på evidensbaserad grund2010In: Att bli sjuksköterska - en introduktion till yrke och ämne / [ed] Elisabeth Dahlborg-Lyckhage, Lund: Studentlitteratur AB , 2010, 181-204 p.Chapter in book (Other academic)
  • 17.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Being the parent of a ventilator-assisted child: perceptions of the family-health care provider relationship when care is offered in the family home2013In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 19, no 4, 489-508 p.Article in journal (Refereed)
    Abstract [en]

    The number of medically fragile children cared for at home is increasing; however, there are few studies about the professional support these families receive in their homes. The aim of the study was to understand the meanings that parents had about the support they received from health care professionals who offered care for their ventilator-assisted child in the family home. A phenomenological-hermeneutic method was used. Data included the narratives of five mother-father couples living in Sweden who were receiving professional support for their ventilator-assisted child. The findings indicate that receiving professional support meant being at risk of and/or exposed to the exercise of control over family privacy. The professional support system in the families' homes worked more by chance than by competent and sensible planning. In good cases, caring encounters were characterized by a mutual relationship where various occupational groups were embraced as a part of family life. The findings are discussed in light of compassionate care, exercise of power, and the importance of holistic educational programs.

  • 18.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Caring or being cared for in the home: a metasynthesis describing the encounters between patients, informal caregivers and professionals2007Conference paper (Refereed)
  • 19.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Dagligt liv och livssituation för barn med HMV och deras syskon2010Conference paper (Refereed)
  • 20.
    Lindahl, Berit
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Developing complex interventions.2016Conference paper (Refereed)
  • 21.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Experiences of exclusion when living on a ventilator: reflections based on the application of Julia Kristeva's philosophy to caring science2011In: Nursing Philosophy, ISSN 1466-7681, E-ISSN 1466-769X, Vol. 12, no 1, 12-21 p.Article in journal (Refereed)
    Abstract [en]

    The research presented in this work represents reflections in the light of Julia Kristeva's philosophy concerning empirical data drawn from research describing the everyday life of people dependent on ventilators. It also presents a qualitative and narrative methodological approach from a person-centred perspective. Most research on home ventilator treatment is biomedical. There are a few published studies describing the situation of people living at home on a ventilator but no previous publications have used the thoughts in Kristeva's philosophy applied to this topic from a caring science perspective. The paper also addresses what a life at home on a ventilator may be like and will hopefully add some new aspects to the discussion of philosophical issues in nursing and the very essence of care. Kristeva's philosophy embraces phenomena such as language, abjection, body, and love, allowing her writings to make a fruitful contribution to nursing philosophy in that they strengthen, expand, and deepen a caring perspective. Moreover, her writings about revolt having the power to create hope add an interesting aspect to the work of earlier philosophers and nursing theorists.

  • 22.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Forskningsdesigner inom intensivvård: ljudmiljön på intensivvårds avdelning2007Conference paper (Other academic)
  • 23.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Föräldrars upplevelser av vardagsliv då de har ett barn med ventilatorbehandling: att vara i behov av inkännande och innerligt professionellt stöd.rdic College of Caring Science2013Conference paper (Refereed)
  • 24.
    Lindahl, Berit
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Lighting, sleep and circadian rhythm: An intervention study in the intensive care unit.2015In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 1, no 6, 325-335 p.Article in journal (Refereed)
  • 25.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Månadens forskare. Möten mellan människor och teknologi: Sammanfattning av avhandling2007In: Vårdfacket, ISSN 0347-0911, Vol. 30, no 11, 55-56 p.Article in journal (Other (popular science, discussion, etc.))
  • 26.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Möten mellan människor och teknologi: berättelser från intensivvårdssjuksköterskor och personer som ventilatorbehandlas i hemmet2005Doctoral thesis, monograph (Other academic)
    Abstract [en]

    The overall aim of this thesis is to illuminate meanings of the relation between human beings, technology and care, as narrated by critical care nurses and people in need of home mechanical ventilation (HMV). The data are based on narrative research interviews with six intensive care nurses (I), 13 people who were about to start HMV (II), these 13 people were interviewed for a second time six to eight months after HMV had started (III), and nine persons with more than two years HMV experience (IV). The text was analysed using a phenomenological-hermeneutic research method as described by Lindseth and Norberg. The method is developed from the writings of the French philosopher Paul Ricoeur. The findings illuminate meanings of nursing care in an intensive care unit (I) as undertaking the role of advocacy as a caring response to another human being. The basic condition for this caring response depends on the nurses' openness and sensitivity to the needs of patients or patients' next of kin. The nurses were aware of the influence of technology and tried to modify its negative effects. Meanings of becoming dependent on HMV (II) are interpreted and metaphorically expressed as "to get one's breath" and "to hold one's breath" respectively. On the one hand, breathing ensures the cellular oxidation process within the body, but on the other hand there can be "shortness of breath" in "spiritual breathing", and starting HMV will influence patients' whole life situation, body and spirit. After using a ventilator six to eight months, meanings of a life dependent on a ventilator was interpretd as either a closure or an opening of the lived body to oneself, other people and the world. This interpretation is illustrated by two images. A life on a ventilator at home is not to be seen as static being. On the contrary, it is a being which moves and changes over time. Being dependent on a ventilator and living at home, as narrated by adults with more than two years of HMV experience (IV), was interpreted as being able to rise above yourself and your personal boundaries in order to live a good life. These meanings are bound up with experiencing a vital force and interdependency, and despite fragility being able to reach others and the outside world. Design and function of technology had an impact on the lived body. The comprehensive understanding of the four articles (I-IV) unfolded meanings of the relation between human beings, technology and care, as an interchange and a creation of physical and spiritual energy among humans and between human and technology. It could be an experience of the lived body being filled with as well as emptied of energy. This interpretation points at a call for the caring personnel to be attentive and to listen to the voices of the lived body in health and illness, and to bear witness to those who suffer. Technology acts between the person and the world and in order to be embodied, technology must be "transparent", i.e. beautiful and fit to its use.

  • 27.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Om metaforer I vårdarbete och vårdforskning.2007In: Vårdens språk – en antologi. / [ed] Sylvia Määttä, Kerstin Segesten, Liber , 2007, 63-91 p.Chapter in book (Other academic)
  • 28.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Patients' suggestions about how to make life at home easier when dependent on ventilator treatment: a secondary analysis2010In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 24, no 4, 684-692 p.Article in journal (Refereed)
    Abstract [en]

    Patients' suggestions about how to make life at home easier when dependent on ventilator treatment - a secondary analysis Background: While quantitative research has provided valuable information, studies presenting patients' experiences have been lacking in the field of knowledge of home mechanical ventilation. The aim of this study was, therefore, to present patient views and suggestions about how to improve home ventilator care and treatment. Method: Data in the present study comprise 35 qualitative research interviews collected for a primary project carried out in the years 2002-2005 and now analysed using qualitative content analysis, the most established method for secondary analysis. Results: The results are presented as six categories: the start-up process, to attach to oneself and the ventilator, to experience home as a shelter, to seek knowledge and understanding, to build up confidence in technology and the need to have people to relate to and depend on. The article presents a brief summary of patients' ideas and requests to healthcare providers and manufacturers involved in home ventilator treatment. Conclusions: The patients' perspectives and experiences include much useful knowledge of interest for nursing and medical professional practices. More attention needs to be given to these experiences in both home ventilator treatment and research. It is also of great importance for nurses and researchers to encourage manufacturers to develop beautiful and user-friendly design in their products, suitable for 'home use' and not just in hospitals.

  • 29.
    Lindahl, Berit
    [external].
    Patients’ suggestions on how to make life easier at home when being dependent on ventilator treatment: A secondary analysis2010In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 24, no 4, 684-892 p.Article in journal (Refereed)
    Abstract [en]

    Background:  While quantitative research has provided valuable information, studies presenting patients’ experiences have been lacking in the field of knowledge of home mechanical ventilation. The aim of this study was, therefore, to present patient views and suggestions about how to improve home ventilator care and treatment. Method:  Data in the present study comprise 35 qualitative research interviews collected for a primary project carried out in the years 2002–2005 and now analysed using qualitative content analysis, the most established method for secondary analysis. Results:  The results are presented as six categories: the start-up process, to attach to oneself and the ventilator, to experience home as a shelter, to seek knowledge and understanding, to build up confidence in technology and the need to have people to relate to and depend on. The article presents a brief summary of patients’ ideas and requests to healthcare providers and manufacturers involved in home ventilator treatment. Conclusions:  The patients’ perspectives and experiences include much useful knowledge of interest for nursing and medical professional practices. More attention needs to be given to these experiences in both home ventilator treatment and research. It is also of great importance for nurses and researchers to encourage manufacturers to develop beautiful and user-friendly design in their products, suitable for ‘home use’ and not just in hospitals.

  • 30.
    Lindahl, Berit
    University of Borås, School of Health Science.
    The ICU patient room as a healing environment: a research programme based on evidence-based desig2011Conference paper (Refereed)
  • 31.
    Lindahl, Berit
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    The patient experience of intensive care: A meta-synthesis of Nordic studies.2015In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 52, no 8, 1354-1361 p.Article in journal (Refereed)
    Abstract [en]

    Background: Sedation practices in the intensive care unit have evolved from deep sedation and paralysis toward lighter sedation and better pain management. The new paradigm of sedation has enabled early mobilization and optimized mechanical ventilator weaning. Intensive care units in the Nordic countries have been particularly close to goals of lighter or no sedation and a more humane approach to intensive care. Objectives: The aim of our study was to systematically review and reinterpret newer Nordic studies of the patient experience of intensive care to obtain a contemporary description of human suffering during life-threatening illness. Design: We conducted a meta-synthesis in which we collected, assessed, and analyzed published qualitative studies with the goal of synthesizing these findings into a new whole. Analysis was based on the scientific approach of Gadamerian hermeneutics. Settings: Nordic intensive care units. Participants: Patients in Nordic intensive care units. Methods: We performed a literature search of qualitative studies of the patient experience of intensive care based on Nordic publications in 2000-2013. We searched the following databases: PubMed, CINAHL, Scopus, and PsycINFO. Each original paper was assessed by all authors using the Critical Appraisal Skills Program instrument for qualitative research. We included 22 studies, all of which provided direct patient quotes. Results: The overarching theme was identified as: The patient experience when existence itself is at stake. We constructed an organizing framework for analysis using the main perspectives represented in the included studies: body, mind, relationships, and ICU-environment. Final analysis and interpretation resulted in the unfolding of four themes: existing in liminality, existing in unboundedness, existing in mystery, and existing on the threshold. Conclusions: Our main finding was that human suffering during intensive care is still evident although sedation is lighter and the environment is more humane. Our interpretation suggested that patients with life-threatening illness descend into a liminal state, where they face the choice of life or death. Caring nurses and family members play an important role in assisting the patient to transition back to life.

  • 32.
    Lindahl, Berit
    University of Borås, School of Health Science.
    The process of developing and implementing a complex nursing interventioin study in an ICU2012Conference paper (Refereed)
  • 33.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Vård i högteknologiska vårdmiljöer2012Conference paper (Other academic)
  • 34.
    Lindahl, Berit
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Bergbom, Ingegerd
    Göteborgs Universitet.
    The development and implementation of a complex clinical intervention project in an ICU2015Conference paper (Refereed)
    Abstract [en]

    Title (poster): The development and implementation of a complex clinical intervention project in an ICU

    Aim: The poster presents an example of a complex intervention research in an intensive care unit (ICU).

    Design: The intervention comprised a refurbishment of one two-bed patient room in a general ICU. An identical room was kept as a control. The Medical Research Council’s (MRC) guideline directed the project. Principal concepts were: health geography, evidence-based design and healing environments, viewed from a caring science perspective.

    Results: Central aspects investigated were a cyclic light system, sound environment and changes in interior design. Light and sound measurements were carried out and instruments were used to identify light experiences. Interviews and data from patients’ records were also used. Some results from the initial evaluation process are reported.

    Conclusion: It is complicated to carry out intervention research in ICUs due to the patients’ and next of kin’s situation, staffing and environmental issues. Close contact with the clinical field are of vital importance.

  • 35.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Dagborn, Kerstin
    University of Borås, School of Health Science.
    Nilsson, M
    A student-centered clinical educational unit: a description of a model2008In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 9, no 1, 5-12 p.Article in journal (Refereed)
    Abstract [en]

    This article describes a model of a student-centered Clinical Education Unit (CEU) within an undergraduate nursing education programme. The model comprises three various levels of learning in the nursing education programme at School of Health Sciences, University College of Borås, Sweden. The three levels of learning correspond to the first, second and third programme years of the nursing education. Each level of learning is represented by clinical training in three different hospital care settings. The educational model was developed through a co-operation between hospital representatives and nurse educators at the university college. The model is built on a human caring science perspective and knowledge that focuses on patients’ lived experience of their care and illness. The model emphasises collaboration in communion between students, hospital and faculty members as an alternative to bridge the gap between theory and practice in nursing. Reflection and critical thinking are the vital components in a clinical learning environment.

  • 36.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Dagborn, Kerstin
    University of Borås, School of Health Science.
    Nilsson, Maud
    University of Borås, School of Health Science.
    A student-centered clinical educational unit: description of a reflective learning model2009In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 9, no 1, 5-12 p.Article in journal (Refereed)
    Abstract [en]

    This article describes a model of a student-centered Clinical Education Unit (CEU) within an undergraduate nursing education programme. The model comprises three various levels of learning in the nursing education programme at School of Health Sciences, University College of Borås, Sweden. The three levels of learning correspond to the first, second and third programme years of the nursing education. Each level of learning is represented by clinical training in three different hospital care settings. The educational model was developed through a co-operation between hospital representatives and nurse educators at the university college. The model is built on a human caring science perspective and knowledge that focuses on patients’ lived experience of their care and illness. The model emphasises collaboration in communion between students, hospital and faculty members as an alternative to bridge the gap between theory and practice in nursing. Reflection and critical thinking are the vital components in a clinical learning environment.

  • 37.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Efraimsson, E
    Lindblad, BM
    Caring and being cared for at home: a meta-synthesis describing the relationships between patients, informal caregivers and health professionals2011In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 20, no 3-4, 454-463 p.Article in journal (Refereed)
    Abstract [en]

    AIM: The present study describes, through a meta-synthesis, the relationship between patients, informal caregivers and health professionals involved in home care. BACKGROUND: Today, many people receive help from health care professionals in their homes with the consequence that, for many health care professionals, their working place is the patients' homes. Research that addresses the dynamics in the caring relationship in home care seems to be rare. DESIGN: A meta-synthesis is an integrated interpretation of qualitative research findings, which is more substantive than the results from each individual investigation. METHOD: We performed a systematic literature search regarding studies published during the period 1992-2005, using the search terms home nursing, professional and home health care. The included studies described relations in a home care context, between health professionals and patients or relations between health professionals, patients and their informal caregivers published in the same study. RESULTS: The findings showed that when professionals entered people's home, the private area changed. The study presents an interpretation of the changed meanings of home as the place and space for professional care. We described the meanings of the relationship in two main themes with subthemes. The main themes are 'being there' and 'home care as a co-creation'. The understanding of relationships in home care is seen as the development of a professional friendship. This concept is reflected on through the writings of Aristotle and Alberoni. CONCLUSION: To address these concerns, it is important that home care providers, recipients and their family members develop friendships. These friendships should be a part of any professional relationship. RELEVANCE TO CLINICAL PRACTICE: When health professionals enter patients' homes, they have to be aware of the risk of transgressing borders of privacy. In addition, devaluing patients' or their informal caregivers' knowledge and their opinions about the care is interpreted as an exercise of institutional power.

  • 38.
    Lindahl, Berit
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Johansson, Lotta
    Göteborgs Universitet.
    Bergbom, Ingegerd
    Göteborgs universitet.
    Knutsson, Susanne
    Högskolan Jönköping.
    Noise in the ICU patient room -- Staff knowledge and clinical improvements2016In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, no 35, 1-9 p.Article in journal (Refereed)
    Abstract [en]

    Introduction

    The acoustic environment in the intensive care unit patient room, with high sound levels and unpredictable sounds, is known to be poor and stressful. Therefore, the present study had two aims: to investigate staff knowledge concerning noise in the intensive care unit and: to identify staff suggestions for improving the sound environment in the intensive care unit patient room.

    Method

    A web-based knowledge questionnaire including 10 questions was distributed to 1047 staff members at nine intensive care unit. Moreover, 20 physicians, nurses and enrolled nurses were interviewed and asked to give suggestions for improvement.

    Results

    None of the respondents answered the whole questionnaire correctly; mean value was four correct answers. In the interview part, three categories emerged: improving staff's own care actions and behaviour; improving strategies requiring staff interaction; and improving physical space and technical design.

    Conclusion

    The results from the questionnaire showed that the staff had low theoretical knowledge concerning sound and noise in the intensive care unit. However, the staff suggested many improvement measures, but also described difficulties and barriers. The results from this study can be used in the design of future interventions to reduce noise in the intensive care unit as well as in other settings.

  • 39.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Lidén, Eva
    University of Borås, School of Health Science.
    Lindblad, Britt-Marie
    University of Borås, School of Health Science.
    A meta-synthesis describing the relationships between patients, informal caregivers and health professionals in home-care settings2011In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 20, no 3-4, 454-463 p.Article in journal (Refereed)
    Abstract [en]

    Aim. The present study describes, through a meta-synthesis, the relationship between patients, informal caregivers and health professionals involved in home care. Background. Today, many people receive help from health care professionals in their homes with the consequence that, for many health care professionals, their working place is the patients' homes. Research that addresses the dynamics in the caring relationship in home care seems to be rare. Design. A meta-synthesis is an integrated interpretation of qualitative research findings, which is more substantive than the results from each individual investigation. Method. We performed a systematic literature search regarding studies published during the period 1992–2005, using the search terms home nursing, professional and home health care. The included studies described relations in a home care context, between health professionals and patients or relations between health professionals, patients and their informal caregivers published in the same study. Results. The findings showed that when professionals entered people's home, the private area changed. The study presents an interpretation of the changed meanings of home as the place and space for professional care. We described the meanings of the relationship in two main themes with subthemes. The main themes are 'being there' and 'home care as a co-creation'. The understanding of relationships in home care is seen as the development of a professional friendship. This concept is reflected on through the writings of Aristotle and Alberoni. Conclusion. To address these concerns, it is important that home care providers, recipients and their family members develop friendships. These friendships should be a part of any professional relationship. Relevance to clinical practice. When health professionals enter patients' homes, they have to be aware of the risk of transgressing borders of privacy. In addition, devaluing patients' or their informal caregivers' knowledge and their opinions about the care is interpreted as an exercise of institutional power.

  • 40.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Lindblad, B-M
    Family Members’ Experiences of Everyday Life When a Child Is Dependent on a Ventilator A Metasynthesis Study2011In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 17, no 2, 241-269 p.Article in journal (Refereed)
    Abstract [en]

    Children using mechanical ventilation for survival represent a small, but growing, vulnerable population in society. The aim of this study was to describe the existing qualitative research that examined family members’ experiences when a child is dependent on ventilator at home. A metasynthesis is an interpretative integration of qualitative research findings based on a systematic literature search. Twelve original research reports focusing on the life situation of ventilator- and technology-dependent children and their families published between 1998 and 2006 were selected as data. Themes from the metasynthesis included experiences of the ill child, siblings, and parents and the meaning of space and place. These findings provide an understanding of the family members’ experiences when a child is dependent on a ventilator for survival. Recommendations for future research with this population of families include a greater focus on professional support systems and family strengths and the use of longitudinal research methods using observation and interviews.

  • 41.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Norberg, A
    University of Borås, School of Health Science.
    Clinical group supervision in an intensive care unit: a space for relief, and for sharing emotions and experiences of care2002In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 11, no 6, 809-818 p.Article in journal (Refereed)
    Abstract [en]

    Much has been written about models, aims and the concept of clinical group supervisional, although few studies are empirical or focus on intensive care. The aim of the study was to illuminate the process and describe, using qualitative content analysis, the content of conversations carried out during the course of clinical group supervision sessions among Registered Nurses (RN) and enrolled nurses (EN) working in an intensive care unit (ICU). During the supervision sessions, ENs talked about their life-world from a caring perspective, while RNs focused on their professional development. Both ENs and RNs regarded the supervision sessions as a space for relief and for sharing emotions and caring experiences, which helped to manage complex nursing care. The findings are viewed in the light of Roach's theoretical framework describing the attributes of professional care as five Cs. Clinical group supervision is interpreted as supportive in developing interpersonal skills and a sensitive nursing practice.

  • 42.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Sandman, PO
    University of Borås, School of Health Science.
    The role of advocacy in critical care nursing: a caring response to another1998In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 14, no 4, 179-186 p.Article in journal (Refereed)
    Abstract [en]

    With the aim of clarifying critical care nursing, six critical care nurses, working in a Swedish intensive care unit (ICU) were each asked to narrate a care situation with which they had been satisfied or dissatisfied. The stories were tape-recorded and analysed using a phenomenological-hermeneutic approach inspired by the philosophy of Ricoeur. The themes uncovered in the analysis describe the nurse's role of advocacy as: to build a caring relationship, to carry out a commitment, to empower, to make room for and interconnect, to be a risk-taker, to be a moral agent and to create a trusting atmosphere conducive to recovery. The meaning of the role of advocacy lies in a moral and existential response to another human being, an expression of caring. Advocacy rests on the patient-nurse relationship and occurs as an outspoken demand of another human being whose autonomy is threatened. The results are discussed from the ethical perspectives of Lögstrup, Watson's concept of care, and existential advocacy as expressed by Gadow.

  • 43.
    Lindahl, Berit
    et al.
    [external].
    Sandman, PO
    Rasmussen, B
    Being dependent of home mechanical ventilation: depictions of patients’ experiences over time2006In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, ISSN 1049-7323, Vol. 16, no 7, 881-901 p.Article in journal (Refereed)
    Abstract [en]

    In this study, the authors describe the meanings of experiences of being dependent on a ventilator (HMV) and living at home as narrated by 13 people who had been using a ventilator via a mask or tracheostomy for half a year. The analyses revealed various movements across time toward the goal of using the ventilator successfully, and some narratives depicted suffering caused by care. The analyses also yielded different representations of embodiment. These findings were abstracted into two contrasting meanings of the experience of using HMV over time: a closing in or an opening up of the lived body, oneself, to other people and to the world. The authors illustrate this interpretation with two images. Ignorance and negative attitudes on the part of professionals working and/or managing care in the patients' homes are interpreted as causing suffering and intensifying a closed-in mode of being.

  • 44.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Sandman, PO
    University of Borås, School of Health Science.
    Rasmussen, B
    University of Borås, School of Health Science.
    Meanings of living at home on a ventilator2003In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 10, no 1, 19-27 p.Article in journal (Refereed)
    Abstract [en]

    Nine adults were interviewed in order to illuminate the meanings of being dependent on a ventilator and living at home. The data were analysed using a phenomenological-hermeneutic method inspired by the philosophy of Ricoeur. Five main themes emerged through the analysis: experiencing home as a safe and comfortable space from which to reach out, experiencing the body as being frail, brave and resilient, striving to live in the present, surrendering oneself to and trusting others, and experiencing technology as a burden and a relief to the lived body. Meanings of being home on a ventilator were interpreted as maintaining autonomy and persistence in interaction with the ventilator and other human beings and being able to rise above yourself and your personal boundaries in order to live a good life. These meanings indicate that aesthetic and ethical values impact on the lived body. They are bound up with experiencing a vital force and interdependency, bringing safety and courage into daily life.

  • 45.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Sandman, PO
    University of Borås, School of Health Science.
    Rasmussen, B
    University of Borås, School of Health Science.
    On becoming dependent on home mechanical ventilation2004In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 49, no 1, 33-42 p.Article in journal (Refereed)
    Abstract [en]

    Aim.  The aim of this paper is to illuminate meanings of becoming dependent on home mechanical ventilator treatment. Background.  People suffering from chronic alveolar hypoventilation and requiring home mechanical ventilation represent a small but increasing group in society, and are some of the most vulnerable individuals with chronic disabilities. Method.  Thirteen people about to begin ventilator treatment at home were interviewed. Data were tape-recorded and analysed according to a phenomenological-hermeneutic method. Findings.  Findings revealed two contrasting meanings of being in the process of becoming dependent on a ventilator, interpreted as getting breath or holding breath. This interpretation is presented in two composite stories. Conclusions.  The findings imply possibilities and deficiencies in meeting patients’ existential needs, such as helping them to breathe spiritually by supporting them as they get their breath after such a life-changing event as becoming dependent on a ventilator.

  • 46.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Sandman, P-O
    Rasmussen, Birgit
    On being dependent of home mechanical ventilation: depictions of patients' experiences over time2006In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 16, no 7, 33-42 p.Article in journal (Refereed)
    Abstract [en]

    In this study, the authors describe the meanings of experiences of being dependent on a ventilator (HMV) and living at home as narrated by 13 people who had been using a ventilator via a mask or tracheostomy for half a year. The analyses revealed various movements across time toward the goal of using the ventilator successfully, and some narratives depicted suffering caused by care. The analyses also yielded different representations of embodiment. These findings were abstracted into two contrasting meanings of the experience of using HMV over time: a closing in or an opening up of the lived body, oneself, to other people and to the world. The authors illustrate this interpretation with two images. Ignorance and negative attitudes on the part of professionals working and/or managing care in the patients’ homes are interpreted as causing suffering and intensifying a closed-in mode of being.

  • 47.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Skyman, E.
    Fryklund, B.
    Kroppen, kroppslig vård och hygien2009In: Omvårdnadens grunder. Hälsa och ohälsa / [ed] Anna-Carin Edberg, Helle Wijk, Studentlitteratur , 2009, 646-676 p.Chapter in book (Other academic)
  • 48.
    Olausson, Sepideh
    et al.
    University of Borås, School of Health Science.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Ekebergh, Margareta
    University of Borås, School of Health Science.
    The ICU patient room: Views and meanings as experienced by the next of kin: A phenomenological hermeneutical study2012In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 28, no 3, 176-184 p.Article in journal (Refereed)
    Abstract [en]

    The rooms in Intensive Care Units are considered as high-tech environments and believed to affect recovery process and wellbeing of patients. Moreover, the design and interiors affect the interplay between the patient and the next of kin. Objective The aim of this study was to describe and interpret the meanings of the intensive care patient room as experienced by next of kin. Design Next of kin (n = 14) from two different intensive care units participated. Data were collected through photo-voice and analysed using aphenomenological hermeneutical method. Results Three major themes emerged; dwelling in the room and time, becoming at home and extension of the room. The results show that the room is perceived as a lived and extended place and space. The design, interiors and furnishing in the patient room are fundamental in shaping the next of kin's experiences in the room and affect wellbeing. Conclusions How intensive care patient rooms are designed, the place given to next of kin and the way they are received in the room are decisive for the support given to the loved one. Simple interventions can make the patient room a more healing environment.

  • 49.
    Olausson, Sepideh
    et al.
    University of Borås, School of Health Science.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Ekebergh, Margaretha
    University of Borås, School of Health Science.
    A phenomenological study of being cared for in a critical care setting: The meanings of the patient room as a place of care.2013In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 29, no 4, 234-243 p.Article in journal (Refereed)
    Abstract [en]

    Summary Previous research highlights the impact of care and treatment in ICUs on the patient recovery process and wellbeing. However, little is known about how the interior design in the ICU settings may affect patients’ wellbeing. Objective The aim of this study is, by using a lifeworld perspective, to reveal the meanings of the ICU settings as a place of care. Design Nine patients from three ICUs in Sweden participated. Data were collected using photo-voice methodology and were analysed using a reflective lifeworld phenomenological approach. Results The ICU setting as a place of care for critically ill patients is a complex and multidimensional phenomenon. The place is constituted of patients, staff and technical equipment. The struggle for life and occurrences taking place there determine how the room is perceived. The tone and touch of caring together with interior design are fundamental for the room as lived. The room is experienced in various moods; a place of vulnerability, a place inbetween, a place of trust and security, a life-affirming place, a place of tenderness and care and an embodied place. Conclusion Promoting patients’ well-being and satisfaction of care involves integrating a good design and a caring attitude and paying attention to patients’ needs.

  • 50.
    Olausson, Sepideh
    et al.
    University of Borås, School of Health Science.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Ekebergh, Margaretha
    University of Borås, School of Health Science.
    Giving voice to loved ones: Using photo-voice as a data collection method in ICU2011Conference paper (Refereed)
    Abstract [en]

    The Intensive Care Unit (ICU) is a place of care for the most critically ill patients. The ICU rooms are considered to be one of the most complicated rooms to design. Providing successful intensive care requires that human, technologies and spatial resources are integrated in a rigorous way. Research shows that being a patient or next-of-kin in ICU is a traumatic experience not only because of the illness but also because of one’s human existence is threatened. Literature suggests that the presence of next-of-kin and the design of ICU affect the patients’ recovery and wellbeing.

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