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  • 1.
    Berg, Marie
    et al.
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Arvid Wallgrens backe 1, 413 46 Gothenburg, Sweden; Faculty of Medicine and Community Health, Evangelical University in Africa, Bukavu, Democratic Republic of Congo; Centre for Person‐centred Care (GPCC) University of Gothenburg, Arvid Wallgrens backe, Hus 1, 413 46 Gothenburg, Sweden.
    Carlsson-Lalloo, Ewa
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare. Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Arvid Wallgrens backe 1, 413 46 Gothenburg, Sweden; Centre for Person‐centred Care (GPCC) University of Gothenburg, Arvid Wallgrens backe, Hus 1, 413 46 Gothenburg, Sweden.
    Ngongo, F. K.
    Faculty of Theology, Evangelical University in Africa, Bukavu, Democratic Republic of Congo.
    Bogren, M.
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Arvid Wallgrens backe 1, 413 46 Gothenburg, Sweden; Centre for Person‐centred Care (GPCC) University of Gothenburg, Arvid Wallgrens backe, Hus 1, 413 46 Gothenburg, Sweden.
    Contextual factors influencing implementation of a university-based midwifery education programme in Central Africa: A qualitative study2023In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 71, article id 103720Article in journal (Refereed)
    Abstract [en]

    Aim: To investigate contextual factors and their influence on implementing a 90-credit midwifery education programme for nurses at a university in the eastern DRC. Background: To improve maternal and neonatal health, there is a government policy in the Democratic Republic of Congo (DRC) to educate midwives at a higher education level according to international norms. This study investigates contextual factors and their influence on the implementation of a midwifery education programme which is based on national curriculum and has a profile of person-centred care, simulation-based learning pedagogy and information and communication technology. Method: A qualitative study was conducted with data collected through semi-structured interviews with 22 participants who were directly or indirectly involved in establishing the midwifery education programme. Transcribed interviews were analysed using content analysis. Results: The factors influencing the implementation of the new midwifery education programme comprise facilitating and hindering factors. Facilitating factors were: (i) awareness that midwives educated at a higher education level can deliver higher-quality health care, (ii) women are motivated to seek care from well-educated midwives, (iii) the planned programme is attractive and (iv) the university has a stable academic administration and established collaborations. Hindering factors were: (i) Students’ lack of prerequisites for study; (ii) objections to educating midwives at a higher education level; (iii) inadequate teaching resources; and (iv) inadequate working conditions for midwives. Conclusion: The facilitating factors strengthen the belief that it is possible to implement this midwifery education programme, while the hindering factors need to be addressed to run the programme successfully. The findings can guide higher education institutions starting similar midwifery education programmes in the DRC and elsewhere, although it is crucial to conduct a context study in those specific contexts. 

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  • 2. Bogren, Malin
    et al.
    Carlsson-Lalloo, Ewa
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Berg, Marie
    Temple, Frida
    Personcentrerad vård: egen profil i en barnmorskeutbildning i DR Kongo2022In: Jordemodern, no 8, p. 28-31Article in journal (Other (popular science, discussion, etc.))
  • 3.
    Carlsson-Lalloo, Ewa
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Implementation of midwifery education in Democratic Republic of Congo2023Conference paper (Refereed)
    Abstract [en]

    The Democratic Republic of Congo (DRC) has high rates of maternal and newborn mortality. To address these challenges, a midwife education program emphasizing person-centered care and simulation-based learning is being implemented at the Evangelical University Africa (UEA) in Eastern DRC. The aim is to describe the development and implementation of this programme.

  • 4.
    Carlsson-Lalloo, Ewa
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Implementation of Person-Centered Care in midwifery education in Democratic Republic of Congo2023Conference paper (Refereed)
  • 5.
    Carlsson-Lalloo, Ewa
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Implementing person-centred care using the GPCC-modell2022Conference paper (Other academic)
  • 6.
    Carlsson-Lalloo, Ewa
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Sexuality, childbirth and supportive conditions in women living with HIV in Sweden2023Conference paper (Refereed)
    Abstract [en]

    Objectives: HIV can complicate sexuality, pregnancy, and childbirth for women living with HIV (WLHIV). Despite that effective antiretroviral treatment has eliminated the risk of sexual transmission (undetectable equals untransmittable (U=U)), there is still expressed uncertainty of risks of transmitting HIV to a sexual partner or a child. Also, structural barriers such as poverty, HIV-related stigma, and violence can challenge wellbeing related to sexuality and childbirth. There is a need for more knowledge about what kind of support WLHIV need. The aim of this study was to identify supportive conditions related to sexuality and childbirth in WLHIV in Sweden.Method: A phenomenological reflective lifeworld research approach was used. Transcribed interviews with 18 women living with HIV in Sweden were analyzed. Results: When living with HIV, “feeling safe with oneself and in relationships with others” is essential for wellbeing related to sexuality and childbirth for WLHIV. When feeling safe, self-esteem gets stronger, leading to feeling more confident about decisions that fulfill needs and desires related to sexuality, pregnancy, and giving birth. Feeling safe is a condition that can vary with medical and social conditions and depends on the woman’s environment and interactions with others. Conditions that support sexual and perinatal wellbeing are described in four constituents, figure 1. Having good overall physical and mental health is a prerequisite. To take responsibility for one’s own wellbeing can create good conditions for pregnancy, childbirth, and the health of the newborn child. Being in a caring context means that safe arenas evolve where caring meetings and conversations can take place. Different relationships can provide caring contexts, such as relations with others having shared spiritual beliefs, other people living with HIV, a partner, or health care professionals. Having access to high quality information about HIV and risks of transmission is often accessed from healthcare professionals, but other channels such as the Internet, HIV organizations, or other people living with HIV also provide information. Accurate knowledge allows development of a true understanding of eventual risks of transmission to a partner or a baby and contributes to the ability to calculate these risks. Also, to ensure the same rights as other women are important, meaning for example to being offered non-judgmental and fair care.Discussion: The study conclude that there is a need for safe arenas and caring contexts for WLHIV. It requires that all those involved in care of WLHIV constantly need to update their knowledge about HIV to be able to provide high quality information to these women. It is also important that all levels in health care organizations have a human rights-based approach aiming to offer non-judgmental and fair care and to prevent discrimination. 

  • 7.
    Carlsson-Lalloo, Ewa
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare. Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Berg, M.
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Rusner, M.
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Svedhem, V.
    Department of Infectious Diseases, Karolinska University Hospital, Stockholm, Sweden.
    Mellgren, Å.
    Department of Infectious Diseases, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Sexual satisfaction and its associations with patient-reported outcomes in a cohort of women living with human immunodeficiency virus in Sweden2022In: International Journal of STD and AIDS (London), ISSN 0956-4624, E-ISSN 1758-1052Article in journal (Refereed)
    Abstract [en]

    Background: Sexual satisfaction is an important dimension of health-related quality of life that needs to be addressed. Various factors may influence sexual satisfaction in women living with HIV (WLHIV); however, research in this area is limited. The aim of this study was to investigate patients’ self-reported sexual satisfaction and its associations with patient-reported outcomes in WLHIV in Sweden. Methods: Data was retrieved from the InfCareHIV registry for the years 2011–2016. The registry includes a self-reported validated 9-item health questionnaire to assess patient-reported outcomes, side effects and adherence. In total, 1292 WLHIV aged ≥18 years were included, corresponding to 42.8% of the female Swedish InfCareHIV cohort 2011–2016. A total of 2444 questionnaires were included in the study. The patient-reported outcomes used were satisfaction with physical health and psychological health, sexual satisfaction, and experiencing side effects from HIV-medication. Associations were tested in univariable and multivariable models. Results: The study shows that there was a significant association between sexual satisfaction and satisfaction with psychological health (p ≤ 0.0001). There was a lower probability of reporting sexual satisfaction in women who were of an older age when they received an HIV-diagnosis (p = 0.033), who had lived for more years with HIV (p = 0.0004), or who had experienced side effects (p = 0.028). Conclusions: This national register-based study identified that sexual satisfaction in WLHIV is associated with psychological health and with having experienced side-effects. Patient-reported outcomes can provide valuable information so that the care of WLHIV covers all aspects of health and supports sexual satisfaction, which is an important part of quality of life. © The Author(s) 2022.

  • 8.
    Carlsson-Lalloo, Ewa
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Mellgren, Åsa
    Sahlgrenska universitetssjukhuset, Göteborg.
    Berg, Marie
    Göteborgs universitet.
    Rusner, Marie
    Göteborgs universitet.
    Supportive conditions for sexual and perinatal wellbeing in women living with HIV in Sweden: A phenomenological study2021In: Sexual & Reproductive HealthCare, ISSN 1877-5756, E-ISSN 1877-5764, Vol. 29, article id 100640Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES: Women living with HIV have specific needs regarding sexuality, pregnancy, and childbirth. However, there is lack of knowledge about how these needs can be met. The aim of this study was to identify supportive conditions for sexual and perinatal wellbeing in women living with HIV in Sweden.

    METHODS: A phenomenological reflective lifeworld research approach was used. Transcribed interviews with 18 women living with HIV in Sweden were analyzed focusing on the meanings of the study phenomenon.

    RESULTS: When living with HIV, "feeling safe with oneself and in relationships with others" is essential for sexual and perinatal wellbeing. This is constituted by having good overall health, being in a caring context, having access to high quality information about HIV, and being ensured the same rights as other women.

    CONCLUSIONS: The study shows that women living with HIV have specific needs for the support of their sexual and perinatal wellbeing. This knowledge can be used by all those engaged in HIV care and HIV prevention in order to improve and implement supportive conditions for women living with HIV. It is important that all those involved in the care of women living with HIV constantly update their knowledge about HIV and women's experiences of living with HIV in order to provide safe arenas and caring contexts that support the wellbeing of these women.

  • 9.
    Carlsson-Lalloo, Ewa
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Rusner, Marie
    Göteborgs universtitet.
    Berg, Marie
    Göteborgs universtitet.
    Svedhem, Veronica
    Karolinska institutet.
    Mellgren, Åsa
    Sahlgrenska universitetssjukhuset, Göteborg.
    People living with HIV in Sweden report high levels of sexual satisfaction in a registry-based cohort study2021In: AIDS Care, ISSN 0954-0121, E-ISSN 1360-0451Article in journal (Refereed)
    Abstract [en]

    Sexual satisfaction can be challenging for people living with HIV (PLWH). To investigate self-reported sexual satisfaction in PLWH and its association with HIV-related biomarkers, a retrospective observational cohort study with data on sociodemographic characteristics and changes in PLWH’s assessment of their sexual satisfaction over time were retrieved from the Swedish National Quality Assurance Registry (InfCareHIV) where patient-related outcomes are reported annually. PLWH who had assessed self-reported sexual satisfaction 2011–2016 were included. Sexual satisfaction was dichotomized into sexual “satisfaction and dissatisfaction” and associations were analysed. In total, 3798 patients (66% men) answered 8202 questionnaires. Overall, 67% reported sexual satisfaction, with women more satisfied than men (72% vs 64%, p < 0.0001). Sexual satisfaction did not differ between patients on antiretroviral treatment (ART) >6 months whether the viral load was suppressed or not. Overall, the probability of reporting sexual satisfaction increased by 4% annually (p < 0.001). This increase may be explained by evolving knowledge about the minimal risks of sexual HIV transmission when on ART together with Sweden’s concomitant revision of legal restrictions. The use of patient-related outcomes in clinical practice is an important tool for facilitating conversations about sexuality in order to promote the health and well-being of PLWH. © 2021 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

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  • 10.
    Sundler, Annelie Johansson
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Carlsson-Lalloo, Ewa
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    A systematic review of research on older persons experiences of aging and living with HIV2023Conference paper (Refereed)
    Abstract [en]

    A systematic review of research on older persons experiences of aging and living with HIV.

  • 11.
    Sundler, Annelie Johansson
    et al.
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Carlsson-Lalloo, Ewa
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Lund, Marie
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Lived experiences of care and treatment for persons living with HIV in old age in Sweden2023Conference paper (Refereed)
1 - 11 of 11
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