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  • 1.
    Israelsson-Skogsberg, Åsa
    University of Borås, Faculty of Caring Science, Work Life and Social Welfare.
    Siblings' Lived Experiences of Having a Brother or Sister With Home Mechanical Ventilation: A Phenomenological Hermeneutical Study2019In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 25, no 3, p. 469-492Article in journal (Refereed)
    Abstract [en]

    Over the past few decades, there has been an increase in the number of children receiving home mechanical ventilation (HMV), and in many ways, families have taken responsibility for the required advanced homecare, which has placed considerable time demands on the family unit. Little is known about the life situation of the siblings of HMV-assisted children; their own voices and an insider perspective are missing. The aim of this study was to illuminate the everyday life experiences of siblings of HMV-assisted children. Data were obtained via interviews with 10 siblings with a median age of 9 years. Data were analyzed using a phenomenological hermeneutical method inspired by the French philosopher Ricoeur. Four themes emerged, all of which suggest that a complex and profound intertwined sibling bond develops that links the past, present, and future. The findings of this study provide valuable information from an insider’s perspective about the meaning of having an HMV-assisted sibling. Family-focused care with particular attention and support for siblings of HMV-assisted children can encourage the development of internal strengths, self-confidence, and resilience.

  • 2.
    Lindahl, Berit
    University of Borås, School of Health Science.
    Being the parent of a ventilator-assisted child: perceptions of the family-health care provider relationship when care is offered in the family home2013In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 19, no 4, p. 489-508Article in journal (Refereed)
    Abstract [en]

    The number of medically fragile children cared for at home is increasing; however, there are few studies about the professional support these families receive in their homes. The aim of the study was to understand the meanings that parents had about the support they received from health care professionals who offered care for their ventilator-assisted child in the family home. A phenomenological-hermeneutic method was used. Data included the narratives of five mother-father couples living in Sweden who were receiving professional support for their ventilator-assisted child. The findings indicate that receiving professional support meant being at risk of and/or exposed to the exercise of control over family privacy. The professional support system in the families' homes worked more by chance than by competent and sensible planning. In good cases, caring encounters were characterized by a mutual relationship where various occupational groups were embraced as a part of family life. The findings are discussed in light of compassionate care, exercise of power, and the importance of holistic educational programs.

  • 3.
    Lindahl, Berit
    et al.
    University of Borås, School of Health Science.
    Lindblad, B-M
    Family Members’ Experiences of Everyday Life When a Child Is Dependent on a Ventilator A Metasynthesis Study2011In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 17, no 2, p. 241-269Article in journal (Refereed)
    Abstract [en]

    Children using mechanical ventilation for survival represent a small, but growing, vulnerable population in society. The aim of this study was to describe the existing qualitative research that examined family members’ experiences when a child is dependent on ventilator at home. A metasynthesis is an interpretative integration of qualitative research findings based on a systematic literature search. Twelve original research reports focusing on the life situation of ventilator- and technology-dependent children and their families published between 1998 and 2006 were selected as data. Themes from the metasynthesis included experiences of the ill child, siblings, and parents and the meaning of space and place. These findings provide an understanding of the family members’ experiences when a child is dependent on a ventilator for survival. Recommendations for future research with this population of families include a greater focus on professional support systems and family strengths and the use of longitudinal research methods using observation and interviews.

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