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A Bridge Between a Lonely Soul and the Surrounding World: A study on Existential Consequences of being Closely Related to a person with Aphasia.
University of Borås, School of Health Science.
2011 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 6, no 4Article in journal (Refereed) Published
Abstract [en]

This study illuminates existential consequences of being closely related to a person suffering from aphasia. Seventeen close relatives were interviewed and their narratives were interpreted with inspiration from Ricoeur, Levinas, Husserl, Winnicot, and Maurice Merleau-Ponty. The emerging interpretations resulted in four themes that illuminate a life characterized by lost freedom, staying, a new form of relationship, and growing strong together with others. An overarching theme suggests that a life together with an aphasic person means being used as a bridge between the aphasic person and the surrounding world. Moreover, it illuminates that a close relative to a person with aphasia is a person who does not leave, despite a heavy burden of lonely responsibility. It is concluded that community services need to fulfill their responsibility of providing support to informal caregivers as suggested by the Swedish lawmakers.

Place, publisher, year, edition, pages
Co-Action Publishing , 2011. Vol. 6, no 4
Keywords [en]
stroke, aphasia, close relatives, community service, life world, hermeneutics
National Category
Pharmaceutical Sciences Psychiatry
Research subject
Integrated Caring Science
Identifiers
URN: urn:nbn:se:hb:diva-3238DOI: 10.3402/qhw.v6i4.7911Local ID: 2320/9780OAI: oai:DiVA.org:hb-3238DiVA, id: diva2:871335
Available from: 2015-11-13 Created: 2015-11-13 Last updated: 2018-01-10Bibliographically approved

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Publisher's full texthttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC3222927/pdf/QHW-6-7911.pdf

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Nyström, Maria

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CiteExportLink to record
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  • apa
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  • de-DE
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