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The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults
Language and Genetics Department, Max Planck Institute for Psycholinguistics, Nijmegen, the Netherlands.ORCID iD: 0000-0001-8685-1516
Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus University Medical Center, Rotterdam, the Netherlands.ORCID iD: 0000-0001-5081-7631
Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus University Medical Center, Rotterdam, the Netherlands.ORCID iD: 0000-0003-3104-5255
Speech and Language, Murdoch Children's Research Institute, Melbourne, Victoria, Australia;Department of Audiology and Speech Pathology, University of Melbourne, Parkville, Victoria, Australia.ORCID iD: 0000-0003-0831-9705
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2024 (English)In: Journal of Speech, Language and Hearing Research, ISSN 1092-4388, E-ISSN 1558-9102, Vol. 67, no 5, p. 1385-1399Article in journal (Refereed) Published
Abstract [en]

PURPOSE: Stuttering is a speech condition that can have a major impact on a person's quality of life. This descriptive study aimed to identify subgroups of people who stutter (PWS) based on stuttering burden and to investigate differences between these subgroups on psychosocial aspects of life.

METHOD: The study included 618 adult participants who stutter. They completed a detailed survey examining stuttering symptomatology, impact of stuttering on anxiety, education and employment, experience of stuttering, and levels of depression, anxiety, and stress. A two-step cluster analytic procedure was performed to identify subgroups of PWS, based on self-report of stuttering frequency, severity, affect, and anxiety, four measures that together inform about stuttering burden.

RESULTS: We identified a high- (n = 230) and a low-burden subgroup (n = 372). The high-burden subgroup reported a significantly higher impact of stuttering on education and employment, and higher levels of general depression, anxiety, stress, and overall impact of stuttering. These participants also reported that they trialed more different stuttering therapies than those with lower burden.

CONCLUSIONS: Our results emphasize the need to be attentive to the diverse experiences and needs of PWS, rather than treating them as a homogeneous group. Our findings also stress the importance of personalized therapeutic strategies for individuals with stuttering, considering all aspects that could influence their stuttering burden. People with high-burden stuttering might, for example, have a higher need for psychological therapy to reduce stuttering-related anxiety. People with less emotional reactions but severe speech distortions may also have a moderate to high burden, but they may have a higher need for speech techniques to communicate with more ease. Future research should give more insights into the therapeutic needs of people highly burdened by their stuttering.

SUPPLEMENTAL MATERIAL: https://doi.org/10.23641/asha.25582980.

Place, publisher, year, edition, pages
2024. Vol. 67, no 5, p. 1385-1399
National Category
Nursing
Research subject
The Human Perspective in Care
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URN: urn:nbn:se:hb:diva-31898DOI: 10.1044/2024_jslhr-23-00562ISI: 001244491700006Scopus ID: 2-s2.0-85192683587OAI: oai:DiVA.org:hb-31898DiVA, id: diva2:1861399
Available from: 2024-05-28 Created: 2024-05-28 Last updated: 2024-10-01Bibliographically approved

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van Dulmen, Sandra

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Engelen, Marscha M.Franken, Marie-Christine J. P.Stipdonk, Lottie W.Horton, Sarah E.Jackson, Victoria E.Reilly, SheenaMorgan, Angela T.Fisher, Simon E.van Dulmen, SandraEising, Else
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