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"Being in good hands": next of kin's perceptions of continuity of care in patients with heart failure
University of Borås, Faculty of Caring Science, Work Life and Social Welfare.ORCID iD: 0000-0002-7633-482x
FoUU-centrum Fyrbodal, Research & Development Primary Health Care Fyrbodal, Region Västra Götaland.
University of Borås, Faculty of Caring Science, Work Life and Social Welfare.ORCID iD: 0000-0001-5005-9535
University of Borås, Faculty of Caring Science, Work Life and Social Welfare.ORCID iD: 0000-0002-9194-3244
2019 (English)In: BMC Geriatrics, E-ISSN 1471-2318, Vol. 19, no 375Article in journal (Refereed) Published
Abstract [en]

Background

Heart failure (HF) is a chronic condition with a variety of diverse symptoms. Patients with HF are usually elderly with multimorbidity, which are both multifaceted and challenging. Being a next of kin to patients with HF is described as a complex task consisting of managing care and treatment, monitoring illness and being an emotional support, while also being able to navigate the healthcare system especially in long-term contact. However, few studies have investigated next of kin’s perceptions of continuity of care in connection with HF. The present study aimed to describe continuity of care as perceived by the next of kin who care for patients with HF.

Methods

This study used a qualitative descriptive design. Semi-structured interviews were conducted with the next of kin (n = 15) of patients with HF to obtain their perceptions of continuity of care. A phenomenographic analysis method was used to capture the participants’ perceptions of the phenomenon.

Results

The analysis reveals that the next of kin perceive that support from healthcare professionals was strongly associated with experiences of continuity of care. Four categories reveal the next of kin’s perceptions of continuity of care: Want to be involved without being in charge; A desire to be in control without acting as the driving force in the care situation; A need for sustainability without being overlooked; and Focusing on making life meaningful while being preoccupied with caregiving activities.

Conclusions

Next of kin perceive continuity of care, when they have access to care and treatment and when caregivers collaborate, regardless of healthcare is given by primary care, municipalities or specialist clinics. A sense of “being in good hands” sums up the need for continuous support, shared decision-making and seamless transitions between caregivers. It seems important that healthcare organisations safeguard effective and collaborative models. Moreover, professionals need to plan and perform healthcare in collaboration with patients and next of kin.

Place, publisher, year, edition, pages
2019. Vol. 19, no 375
Keywords [en]
Continuity of care, Heart failure, Next of kin, Phenomenography, Qualitative research
National Category
Nursing
Research subject
The Human Perspective in Care
Identifiers
URN: urn:nbn:se:hb:diva-22367DOI: 10.1186/s12877-019-1390-xISI: 000511872500003Scopus ID: 2-s2.0-85077287097OAI: oai:DiVA.org:hb-22367DiVA, id: diva2:1383187
Available from: 2020-01-07 Created: 2020-01-07 Last updated: 2024-07-04Bibliographically approved
In thesis
1.
The record could not be found. The reason may be that the record is no longer available or you may have typed in a wrong id in the address field.
2. Kontinuitet som grund för vårdande och hälsa vid hjärtsvikt: patienters, närståendes och sjuksköterskors perspektiv
Open this publication in new window or tab >>Kontinuitet som grund för vårdande och hälsa vid hjärtsvikt: patienters, närståendes och sjuksköterskors perspektiv
2020 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Aim: The overall aim was to examine continuity of care for persons with heart failure from the patients’, next of kin’s and nurses’ perspectives.

Methods: This thesis has a caring science approach and consists of four qualitative studies conducted in a health care context. Studies I and II are based on patients’ experiences of continuity in heart failure. The data were collected through individual interviews and a group interview that was analysed using the grounded theory method. Study III is based on next of kin’s perceptions of continuity of care in heart failure. The data were collected with individual interviews and analysed using a phenomenographic method. Study IV is based on nurses’ perceptions of continuity of care for patients with heart failure. The data were collected with focus group interviews and analysed using a phenomenographic method.

Results: Continuity of care supports caring and health. To patients, continuity is what connects care and life. Continuity of care creates conditions that support the patient’s health processes and vitality; it contributes to the patient being able to maintain continuity in life. To the next of kin, continuity of care contributes to a feeling of being in “good hands”. Continuity can be the support that next of kin need to integrate care into their daily life with the patient and to find a balance between responsibility and commitment in the patient’s care. Nurses have a unique opportunity to create continuity of care in a way that meets the needs and conditions of both patients and next of kin. When continuity is created based on patients’ needs, in a way that is meaningful and relevant to patients’ health, continuity contributes to well-being, safety and autonomy for patients and next of kin. Continuity of care also makes it easier for nurses to collaborate with the patients, next of kin and other professionals.

Conclusion: Continuity makes care caring. Continuity of care supports patients and next of kin to manage life adaptation that accompanies the disease and preserve their well-being and health as much as possible. Continuity of care supports nurses’ professional practice.

Place, publisher, year, edition, pages
Borås: Högskolan i Borås, 2020
Series
Skrifter från Högskolan i Borås, ISSN 0280-381X ; 108
Keywords
Caring, Continuity, Continuity of care, Focus groups, Grounded theory, Heart failure, Next of kin, Nurses, Patients, Phenomenography, Qualitative interviews
National Category
Nursing
Research subject
The Human Perspective in Care
Identifiers
urn:nbn:se:hb:diva-23394 (URN)978-91-88838-78-0 (ISBN)978-91-88838-79-7 (ISBN)
Public defence
2020-10-09, M404, Allégatan 1, Borås, 11:00 (Swedish)
Opponent
Available from: 2020-12-03 Created: 2020-06-24 Last updated: 2020-12-03Bibliographically approved

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Östman, MalinSandvik, Ann-HelénSundler, Annelie Johansson

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