Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Health-care encounters create both discontinuity and continuity in daily life when living with chronic heart failure - A grounded theory study.
Göteborgs Universitet.ORCID iD: 0000-0002-7633-482x
Göteborgs Universitet.
Göteborgs Universitet.
2015 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 10, no 1, article id 27775Article in journal (Refereed) Published
Abstract [en]

Living with chronic heart failure (CHF) often involves lifelong contact with health care, more or less frequently, depending on fluctuating health-generating disruptions in everyday life. To reduce the influence on continuity in life, health-care professionals should preferably focus on supporting patients in managing their daily lives, based on their perspective. The aim of this study was to describe how the interaction in health-care encounters contributes to either continuity or discontinuity in the daily life for persons with CHF. Interviews with 18 participants were carried out, using the grounded theory method, through data collection and analysis. Two core concepts were constructed from data which reveal a model that illuminates the characteristics of the encounters, the actions of health-care professionals and the normative discourse. Patient-centred agenda consists of the categories: "Experiencing a subordinate approach," "Objectifying during the encounter" and "Expected to be compliant." This describes how health-care professionals enhance discontinuity in daily life by using a paternalistic approach in the encounter. Person-centred agenda consists of the categories: "Experiencing an empowering approach," "Person-centredness during the encounter" and "Expected to be capable." It describes how participants perceive that health-care professionals enable them to deal with everyday life which enhances continuity. The findings highlight the importance of health-care professionals' attitudes and communication in encounters with patients. Health care must be designed to support and promote patients' own strategic thinking by strengthening their self-image to enhance continuity in everyday life. The experience of discontinuity is based on the prevailing health-care culture which focuses on disease and medical treatment and regards it as superior to the illness experience in an everyday life context. We therefore strongly suggest a paradigm shift in the health-care organisation and culture in order to support the patients in their efforts to live a meaningful, rich life, in spite of the chronic illness CHF.

Place, publisher, year, edition, pages
2015. Vol. 10, no 1, article id 27775
Keywords [en]
Chronic disease, continuity, grounded theory method, heart failure, illness, patient perspective, person-centred care
National Category
Nursing
Identifiers
URN: urn:nbn:se:hb:diva-12751DOI: 10.3402/qhw.v10.27775ISI: 000357477900001PubMedID: 28229746Scopus ID: 2-s2.0-84936768117OAI: oai:DiVA.org:hb-12751DiVA, id: diva2:1144937
Available from: 2017-09-27 Created: 2017-09-27 Last updated: 2017-10-04Bibliographically approved

Open Access in DiVA

fulltext(499 kB)17 downloads
File information
File name FULLTEXT01.pdfFile size 499 kBChecksum SHA-512
e370c8d731432cbd04e4e76ad03f5c613e75d0b1307177fd24643ac3fcdb638620ade2b0724400c68d15b5f11599cbfa2bb9f37d3aadf2527a03a92d57261947
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Authority records BETA

Östman, Malin

Search in DiVA

By author/editor
Östman, Malin
In the same journal
International Journal of Qualitative Studies on Health and Well-being
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 17 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 109 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf