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Personal care assistants' experiences of caring for people on home mechanical ventilation.
University of Borås, Faculty of Caring Science, Work Life and Social Welfare.ORCID iD: 0000-0003-2972-6908
University of Borås, Faculty of Caring Science, Work Life and Social Welfare. (Vårdande i högteknologiska miljöer)ORCID iD: 0000-0002-0047-9723
2016 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed) Epub ahead of print
Abstract [en]

AIM: The aim of this study was to describe personal care assistants' (PCA) experiences of working with a ventilator-assisted person at home. METHODS: Data were collected from fifteen audiotaped semistructured interviews with PCAs supporting a child or adult using home mechanical ventilation (HMV). Thirteen women and two men participated; their working experience with HMV users ranged from one to 17 years (median 6 years). Data were subjected to qualitative content analysis in an inductive and interpretive manner. FINDINGS: Five categories emerged from the data: Being part of a complex work situation; Taking on a multidimensional responsibility; Caring carried out in someone's home; Creating boundaries in an environment with indistinct limits; and Being close to another's body and soul. CONCLUSIONS: The participants felt very close to the person they worked with, both physically and emotionally. They had a great responsibility and therefore a commensurate need for support, guidance and a well-functioning organisation around the HMV user. There is international consensus that advanced home care will continue to expand and personal care assistance is key in this development. We suggest that one way to move forward for PCAs working with HMV users is to create multiprofessional teams led by a key-person who coordinates the individual needs. More research is needed within this area from a broad perspective including the HMV-assisted persons, relatives, personal care assistants and management organisations.

Place, publisher, year, edition, pages
2016.
Keyword [en]
assistive technolog, home health aides, home health care, qualitative studies, ventilator care
National Category
Medical and Health Sciences
Research subject
Människan i vården
Identifiers
URN: urn:nbn:se:hb:diva-11463DOI: 10.1111/scs.12326PubMedID: 27126367OAI: oai:DiVA.org:hb-11463DiVA: diva2:1056353
Available from: 2016-12-14 Created: 2016-12-14 Last updated: 2016-12-20Bibliographically approved

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Israelsson-Skogsberg, ÅsaLindahl, Berit
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