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The everyday life of young children through their cancer trajectory
University of Borås, Faculty of Caring Science, Work Life and Social Welfare. (människan i vården)
Jönköping University. (CHILD)
Jönköping University. (CHILD)
2016 (English)In: The 48th congress of the international society of paediatric oncology: SIOP, 2016Conference paper, Abstract (Other academic)
Sustainable development
The content falls within the scope of Sustainable Development
Abstract [en]

Background

The young child’s experiences of living with cancer are crucial to providing evidence based care. The aim of this study was to explore and describe experiences of health and functioning in the everyday life of young children with cancer, over a three year period from diagnosis.

Methods

Children and parents were interviewed at four time points and questionnaire data collected at five time points over a three year period from diagnosis. A qualitative content analysis to describe the child’s experiences shortly after diagnosis and six and 12 months later. Mixed methods were used to identify a comprehensive set of ICF-CY codes describing everyday health and functioning in the life of the young child with cancer. These codes were then used to follow changes in everyday health and functioning over the study’s entire three year period from diagnosis.

Results

The everyday life of young children with cancer changes over time and health care services are not always in phase with these changes. Children living with cancer want to be participatory in their care and to have access to their parents as protectors. They need access to and ongoing contact with peers and preschool. Although physical difficulties in living an everyday life with cancer reduce over time, new difficulties emerge as the child post cancer treatment re-enters society.

Conclusions

The results of this study reveal emerging issues of survivorship that need to be addressed as young children learn to live an everyday life with cancer and the effects of its treatment. A structured follow-up throughout the cancer trajectory and not just during active treatment is necessary. A child-centered philosophy of care would guide the child towards attainment of health and wellbeing.

Place, publisher, year, edition, pages
2016.
National Category
Nursing
Research subject
Människan i vården
Identifiers
URN: urn:nbn:se:hb:diva-11381OAI: oai:DiVA.org:hb-11381DiVA: diva2:1055791
Conference
SIOP, Dublin, 2016
Funder
Swedish Childhood Cancer Foundation
Available from: 2016-12-13 Created: 2016-12-13 Last updated: 2017-03-17Bibliographically approved

Open Access in DiVA

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf