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Crowdsourcing Long COVID Sweden (CiLC-S): Exploring Digital Methods and Voluntary Health Data for Research and Response in Social Crises
University of Borås, Faculty of Librarianship, Information, Education and IT.ORCID iD: 0000-0001-5523-0282
Department of Computer and Information Science, The Division of Statistics and Machine Learning, Linköping University, Linköping, Sweden.
Moment Children and Youth Medical Centre, Vällingby, Sweden.
School of Bioscience, University of Skövde, Skövde, Sweden.
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2021 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

We describe in this extended abstract the emergent, multi-disciplinary research project CiLC-S – Crowdsourcing Long COVID Sweden. The information science related part of the project aims to explore i) information needs and strategies of persons afflicted by long term health problems after a COVID-19 infection, and ii) alternative digital methods for inclusive, safe and efficient data collection for research and social response in the COVID-19 pandemic. The purpose of this presentation is to introduce the project and share some early ethical and methodological experiences as a foundation for discussions of current and future possibilities for information science research to respond to individual and societal information needs in the COVID-19 pandemic and similar large-scale social crises through innovative research questions and data collection methods.

Place, publisher, year, edition, pages
2021.
Keywords [en]
COVID-19, data, information needs, information strategies
National Category
Information Studies
Research subject
Library and Information Science
Identifiers
URN: urn:nbn:se:hb:diva-25514DOI: 10.5281/zenodo.7317176OAI: oai:DiVA.org:hb-25514DiVA, id: diva2:1564491
Conference
Information Science Trends – The ASIS&T European Chapter Research Series, June 09 - 11, 2021.
Note

Finansiär och Projektinformation : Tillhör forskningsprojekt "CiLC-S - Crowdsourcing LångtidsCovid Sverige" placerat vid Högskolan i Borås: https://www.hb.se/en/research/research-portal/projects/cilc-s---crowdsourcing-long-covid-sweden/

Två forskargrupper aktuella: "KIR - Kunskapens infrastrukturer" samt "Digitala kulturer och informationspraktiker".

Available from: 2021-06-11 Created: 2021-06-11 Last updated: 2022-11-15

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Publisher's full texthttps://doi.org/10.5281/zenodo.7317176

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Johansson, VeronicaYousefi Mojir, Kayvan

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