Information worlds of people with deafblindness
2020 (English)Conference paper, Published paper (Refereed)
Sustainable development
According to the author(s), the content of this publication falls within the area of sustainable development.
Abstract [en]
Introduction. This paper explores the information world of people with deafblindness, i.e., a diverse group of people whose vision and hearing loss are of such severity that it is hard for their impaired senses to compensate for each other.
Method. An extensive interview study conducted in five European countries. It has examined the level, form and accessibility of information available to people with deafblindness. This paper draws on these interviews, and other material and observations, in providing general characteristics and the results presented here. However, the data and quotations presented in this paper are from the interviews conducted by the authors in Sweden.
Analysis. The analysis of the interviews was done using the coding scheme based on the concepts of small worlds and the theory of information world looking for emerging themes. The scheme was flexible and additional themes were included into it during analysis when they emerged from the data.
Results. The study found that while the lives of most people are facilitated by an abundance of information in various forms and often in taken for granted format, this is not the case for those members of the society with deafblindness who need such information the most. The means of signification and information sources are limited for people with deafblindness not only because of dual sensory impairments, but mainly because of the limited opportunities afforded outside their small worlds.
Conclusions. The improvement of information infrastructures aimed at people with deafblindness will benefit the society and its democratic foundations as a whole and will strengthen the participation of people with deafblindness.
Place, publisher, year, edition, pages
2020. Vol. 25, no 4
Keywords [en]
Information worlds, Small worlds, Public Sphere, Inclusion, Deafblindness
National Category
Other Social Sciences
Research subject
Library and Information Science
Identifiers
URN: urn:nbn:se:hb:diva-23902OAI: oai:DiVA.org:hb-23902DiVA, id: diva2:1474909
Conference
ISIC 2020, Online, September 28 - October 1 2020.
Projects
SUITCEYES
Funder
EU, Horizon 2020, 780814
Note
This paper won the Best Paper Award at ISIC 2020 conference.
Especial thanks go to the study participants who shared their valuable insights with us. Without them this study would not have been possible. The authors are also grateful to colleagues, members of the SUITCEYES project, who took part in the conduct of the broader interviews. This work has been partially funded by the European Union’s Horizon 2020 research and innovation programme under grant agreement No 780814 SUITCEYES
2020-10-112020-10-112021-01-11Bibliographically approved