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Becoming a guest in your own home: Home care in Sweden from the perspective of older people with multimorbidities
Högskolan i Borås, Akademin för vård, arbetsliv och välfärd.ORCID-id: 0000-0001-6663-8515
Högskolan i Borås, Akademin för vård, arbetsliv och välfärd.
Institute of Gerontology, Jönköping University.
Högskolan i Borås, Akademin för vård, arbetsliv och välfärd.
Visa övriga samt affilieringar
2018 (Engelska)Ingår i: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 13, nr 3Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Abstract Background: In line with changing demographics, conditions for older people have also changed. Older people are expected to live and be cared for in their own home for as long as possible. Increasing age also increases the risk of multimorbidity and the need for social services and health care services. Home care, instituted by different laws, is complex and requires cooperation from an older person when his/her home becomes a workplace for service providers.

Aim: This study aims to illuminate the meaning of being an older person with multimorbidity who lives alone and who is cared for in his/her own home.

Design: This study uses a qualitative design with a lifeworld approach.

Methods: Conducted in Sweden in 2016, the researchers interviewed 12 older persons that live alone and receive home care. Data was analysed using qualitative content analysis.

Results: The findings illustrate four sub-themes: adapting to a caring culture, being exposed, participation with limitations and being dependent on forced relationships. The overall theme reveals that older people experience a life-changing situation when receiving home care and they become a guest in their own home.

Conclusions: Becoming older with increased needs means to disrupt one’s life when one’s private home becomes a public arena. Caregivers need to be aware of the gap between their rights by law and an older person’s experiences of receiving home care. Only then can care be offered that enables older people to have a sense of control and experience their home as their own.

Implications for Practice: The findings emphasise the need to view older people as being self-determinant and independent. Older people receiving home care need to be seen as individuals, and their entire life situation should be considered by also acknowledging the important role played by relatives and caregivers.

Ort, förlag, år, upplaga, sidor
2018. Vol. 13, nr 3
Nyckelord [en]
Older people, multimorbidity, caring, home care, lived experience, life world
Nationell ämneskategori
Omvårdnad
Forskningsämne
Människan i vården
Identifikatorer
URN: urn:nbn:se:hb:diva-15643DOI: 10.1111/opn.12194ISI: 000442344100006PubMedID: 29603651Scopus ID: 2-s2.0-85051844566OAI: oai:DiVA.org:hb-15643DiVA, id: diva2:1277148
Tillgänglig från: 2019-01-09 Skapad: 2019-01-09 Senast uppdaterad: 2020-11-13Bibliografiskt granskad
Ingår i avhandling
1. Delad utsatthet: Vård i hemmet ur äldre människors, anhörigas och professionella vårdares perspektiv
Öppna denna publikation i ny flik eller fönster >>Delad utsatthet: Vård i hemmet ur äldre människors, anhörigas och professionella vårdares perspektiv
2020 (Svenska)Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
Abstract [en]

Aim: The overall aim of the thesis was to deepen the knowledge about home care from the perspective of older people, family caregivers, and professional caregivers.

Approach and method: A lifeworld approach was used to describe different experiences of home care. Lifeworld interviews were performed in three studies, and analyses were conducted according to different methodological principles. Study I describes the meaning of home care from the perspective of older people who live alone, including interviews with 12 participants analyzed with qualitative content analysis. Study II describes the life situation in which responsibility for an older person is imposed upon family caregivers. Ten interviews were conducted and analyzed using a phenomenological method. Study III, using phenomenography, describes perceptions of caring responsibility based on interviews with 14 professional caregivers. Study IV explores health and social network factors related to receiving care in the home among older adults (n = 317). Descriptive statistics and regression analyses were conducted. Finally, a synthesis was carried out and interpreted with a philosophical analysis in order to support the understanding of home care from different perspectives as a whole.

Main results: Becoming older with increased caring needs disrupts one’s life when the private home becomes a public arena. The older person needs to adapt to a caring culture, but they are often unable to influence their care and must deal with forced relations. Family caregivers assume a great responsibility that changes and interferes with their whole life situation and impacts their health and relationships. Professional caregivers are also affected to a great extent, as the burden is high. Responsibility is perceived as limitless, constrained by time, moral, overseeing, meaningful and lonesome. To be cared for in one’s own home is complex from both a medical and psychosocial perspective. The results also give an indication of the importance of relationships and increasing awareness of the social perspectives of home care.

Conclusion: This thesis contributes to the existing knowledge of how home care can be experienced from the perspectives of older people, family caregivers and professional caregivers in order to provide good and safe home care based on individual needs. Home care as a phenomenon is complex—it entails a vulnerable situation for the older person, the family caregivers, and professional caregivers. The results show the importance of a holistic perspective that includes individual experiences. They also highlight the importance of considering social perspectives and relationships in home care rather than merely focusing on medical and/or functional factors.

Ort, förlag, år, upplaga, sidor
Borås: Högskolan i Borås, 2020
Serie
Skrifter från Högskolan i Borås, ISSN 0280-381X ; 113
Nyckelord
home care, older people, family caregivers, informal care, formal care, professional caregivers, health, lifeworld.
Nationell ämneskategori
Omvårdnad
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-23848 (URN)978-91-88838-95-7 (ISBN)978-91-88838-96-4 (ISBN)
Disputation
2020-12-04, M404, Sandgärdet, Borås, 09:30 (Svenska)
Opponent
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Disputationen sänds via videolänk, förinformation se kalendariet på hb.se/forskning.

Tillgänglig från: 2020-11-13 Skapad: 2020-09-24 Senast uppdaterad: 2022-04-12Bibliografiskt granskad

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Jarling, AleksandraRydström, IngelaNyström, MariaDalheim Englund, Ann-Charlotte

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