Change search
Link to record
Permanent link

Direct link
BETA
Darcy, Laura
Alternative names
Publications (10 of 26) Show all publications
Enskär, K., Darcy, L., Björk, M., Knutsson, S. & Huus, K. (2020). Experiences of Young Children With Cancer and Their Parents With Nurses' Caring Practices During the Cancer Trajectory.. Journal of Pediatric Oncology Nursing, 37(1), 21-34
Open this publication in new window or tab >>Experiences of Young Children With Cancer and Their Parents With Nurses' Caring Practices During the Cancer Trajectory.
Show others...
2020 (English)In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 37, no 1, p. 21-34Article in journal (Refereed) Published
Abstract [en]

Children with cancer require repeated hospitalizations and the family's everyday life and routines undergo change. Concrete descriptions of how nurses act when caring for children with cancer throughout the various phases of care and treatment are sparsely highlighted in the literature. The aim of this study was to describe young children with cancer and their parents' experiences of nurses' caring practices over a 3-year period, from diagnosis to follow-up. This study is based on semistructured interviews with 25 children newly diagnosed with cancer, aged 1 to 6 years, and their parents, connected to a pediatric oncology unit in Sweden. Child and parent data were analyzed with a deductive content analysis using Swanson's theory of caring. The result shows that nurse care practices directed toward young children with cancer and their parents are to some extent similar across a 3-year period from diagnosis to follow-up but also differ in some ways. Nurses' caring practices aim to support children and parents in the transition to a "new normal." Child- and family-friendly care processes include the following: creating hope and a trustful relationship, asking rather than assuming, providing knowledge and information, performing tasks skillfully, displaying an interest in the child's and parents' life outside the hospital, and helping the family to trust in the future and other health care providers. Based on these results, we recommend the development of a standardized and structured nursing care plan or clinical guideline with detailed information on how to carry out clinical nurse care practices in the different phases.

Keywords
Swanson caring theory, cancer, caring, children
National Category
Nursing
Identifiers
urn:nbn:se:hb:diva-22420 (URN)10.1177/1043454219874007 (DOI)000488438000001 ()31526068 (PubMedID)2-s2.0-85074264023 (Scopus ID)
Available from: 2020-01-13 Created: 2020-01-13 Last updated: 2020-01-14Bibliographically approved
Darcy, L. (2020). The development of The Clinical Assesment Tool "Health and Everyday Functioning in Young Children with Cancer". Child Care Health and Development
Open this publication in new window or tab >>The development of The Clinical Assesment Tool "Health and Everyday Functioning in Young Children with Cancer"
2020 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214Article in journal (Refereed) In press
National Category
Nursing
Identifiers
urn:nbn:se:hb:diva-22447 (URN)10.1111/cch.12744 (DOI)
Available from: 2020-01-16 Created: 2020-01-16 Last updated: 2020-01-17Bibliographically approved
Karlsson, K., Galvin, K. & Darcy, L. (2019). Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care–a discussion paper.. International Journal of Qualitative Studies on Health and Well-being, 14(1)
Open this publication in new window or tab >>Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care–a discussion paper.
2019 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 14, no 1Article in journal (Refereed) Published
Abstract [en]

Purpose: Children's perspectives in the context of health service delivery have historically been seen as unimportant. They have been viewed as unintelligent, unable to effectively share or tell of their experiences or fully participate in their care, potentially resulting in a sense of dehumanisation. 

Method: The present paper illustrates children's experiences when undergoing medical procedures, using application of the eight dimensions of humanised care theoretical framework. 

Results: Findings from six published papers were reflectively interrogated to identify implicit findings related to the dimensions of humanised care. These implicit findings show ways of caring for childrenwhichcan lead to enhanced human sensitivity in care or conversely where the dimensions of being human are obscured to greater or lesser degrees and can result in forms of dehumanisation. 

Conclusions: Inadvertent dehumanising features of practice can be mediated by encouraging the inclusion of children's own lifeworld perspective and make room for their voices in both care and research. In this way the present well documented power imbalance could be addressed. Adding the value of the theoretical framework highlights areas of need for young children to be cared for as human beings.

Place, publisher, year, edition, pages
Taylor & Frances: , 2019
Keywords
Young children, dehumanization, humanization, medical procedures for children, suffering
National Category
Nursing
Research subject
Människan i vården
Identifiers
urn:nbn:se:hb:diva-22372 (URN)10.1080/17482631.2019.1675354 (DOI)000490605700001 ()31621530 (PubMedID)2-s2.0-85073418838 (Scopus ID)
Available from: 2020-01-06 Created: 2020-01-06 Last updated: 2020-01-13Bibliographically approved
Darcy, L. & Karlsson, K. (2019). Meeting young children’s needs in hospital, from a human rights perspective - sustainable caring practices. In: : . Paper presented at Sustainable Caring for Health and Wellbeing.
Open this publication in new window or tab >>Meeting young children’s needs in hospital, from a human rights perspective - sustainable caring practices
2019 (English)Conference paper, Oral presentation with published abstract (Refereed)
National Category
Nursing
Identifiers
urn:nbn:se:hb:diva-22374 (URN)
Conference
Sustainable Caring for Health and Wellbeing
Available from: 2020-01-06 Created: 2020-01-06 Last updated: 2020-01-13Bibliographically approved
Sundler, A. J., Whilson, M., Darcy, L. & Larsson, M. (2019). Swedish School Nurses' Experiences of Child Abuse.. Journal of School Nursing, Article ID 1059840519863843.
Open this publication in new window or tab >>Swedish School Nurses' Experiences of Child Abuse.
2019 (English)In: Journal of School Nursing, ISSN 1059-8405, E-ISSN 1546-8364, article id 1059840519863843Article in journal (Refereed) Epub ahead of print
Abstract [en]

Child abuse recognition and the protection of children is a global concern. In Sweden, the role of the school nurse (SN) is to promote schoolchildren's health and development and to identify and prevent harm. The aim of this study was to describe Swedish SN experiences of suspecting, identifying, and reporting child abuse and to compare them with respect to (a) years of experience as SN, (b) age of SN, and (c) pupil population size. A descriptive design was used. Two-hundred and thirty-three SNs completed a survey detailing their experiences. Most SNs (96%) reported having suspected a child suffering from physical or psychological abuse. Approximately half of them reported occurrences of honor-related violence (54%) and of child sexual abuse (57%). SNs with less nursing experience reported significantly less recognition and reporting of child abuse. The findings indicate that experiences of child abuse are common. Thus, it is vital that SNs have the necessary competency and support to identify and report suspected child abuse.

Keywords
abuse, child maltreatment, health promotion, honor-based violence, neglect, prevention, school nurse, sexual abuse
National Category
Nursing
Research subject
Människan i vården
Identifiers
urn:nbn:se:hb:diva-22309 (URN)10.1177/1059840519863843 (DOI)000478310500001 ()31311406 (PubMedID)2-s2.0-85069878938 (Scopus ID)
Projects
Vårdande, Hälsa och Lärande (VHäL)
Available from: 2019-12-20 Created: 2019-12-20 Last updated: 2020-01-29Bibliographically approved
Kleye, I., Darcy, L., Karlsson, K., Hedén, L. E. & Sundler, A. J. (2019). "This is the way i want it": Children's strategies for dealing with fear and pain during hospital care. In: Ida Kleye (Ed.), : . Paper presented at 12th International Symposium on Pediatric Pain, Basel, 16-20 June, 2019..
Open this publication in new window or tab >>"This is the way i want it": Children's strategies for dealing with fear and pain during hospital care
Show others...
2019 (English)In: / [ed] Ida Kleye, 2019Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Introduction

The aim of this study was to describe children's self-identified strategies for dealing with fear and pain during hospital care and treatment

Keywords
child, fear, pain, strategies
National Category
Pediatrics
Research subject
Människan i vården
Identifiers
urn:nbn:se:hb:diva-22378 (URN)
Conference
12th International Symposium on Pediatric Pain, Basel, 16-20 June, 2019.
Available from: 2020-01-07 Created: 2020-01-07 Last updated: 2020-01-07Bibliographically approved
Darcy, L. & Karlsson, K. (2018). Humanising Care for Sick Children in Hospital: – are we ready to meet the demands of The Convention on Human Rights of the Child (CHRC)?. In: : . Paper presented at 4th PNAE Congress on Paediatric Nursing, Athens, June 1-2, 2018..
Open this publication in new window or tab >>Humanising Care for Sick Children in Hospital: – are we ready to meet the demands of The Convention on Human Rights of the Child (CHRC)?
2018 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Background

Nursing Care of children is complex and nurses need specific knowledge in meeting children to ensure high quality care. Caring for children based on their age, developmental stage and maturity can be a challenge for nurses and sets demands on care. When the CRC becomes law in Sweden 2020 children’s rights will be strengthened and we can expect repercussions in the quality of care delivered to children in need

 

Aim

The aim of this study was to investigate the degree to which nurses in paediatric hospital services work in compliance with the CRC.

 

Method

Nurses in paediatric services in Western Sweden answered a survey on if their work situation allowed them to give care to children in accordance with the CRC. Survey responses (n=69) were analysed with descriptive analysis. Personal interviews were performed with paediatric nurses (n=9) and analysed with a qualitative content analysis.

 

Results

Nurses working in paediatric services are well aware of children’s rights in health care and strive to meet children’s needs. However, a stressed working situation with lack of time and/or an environment that is not child friendly means that their caring is not always optimal. Children are not participatory to the degree nurses would wish then to be and the CRC stipulates they should.

 

Conclusions

Nurses working with children show competence in and knowledge of children’s needs. However thay are limited by their working environments. Clear guidelines and working tools such as time for reflection are suggestions of measures that need to be taken to ensure compliance with the upcoming demands of the CRC.

Keywords
children, paediatric care, convention on rights of the child
National Category
Nursing
Research subject
Människan i vården
Identifiers
urn:nbn:se:hb:diva-15512 (URN)
Conference
4th PNAE Congress on Paediatric Nursing, Athens, June 1-2, 2018.
Available from: 2019-01-02 Created: 2019-01-02 Last updated: 2019-01-03Bibliographically approved
Darcy, L. (2018). Meeting the social needs of young children with cancer: – a transdisciplinary implementation of research results.. In: : . Paper presented at 50th Congress of the International Society of Paediatric Oncology (SIOP 2018), Kyoto, November 16-19, 2018.
Open this publication in new window or tab >>Meeting the social needs of young children with cancer: – a transdisciplinary implementation of research results.
2018 (English)Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Background

Young children are increasingly surviving their cancer and their experiences of living with cancer are crucial to providing evidence based care. Their own experiences of everyday life with cancer were elicitated by interview shortly after diagnosis and six, 12, 18 and 36 months later (2011-2015). Qualitative analyses of the results described the child living with cancer over a three year period as a child apart, striving to live an everyday life. A strong sense of loneliness, isolation, feeling left out and feeling different persisted throughout the study. Emerging issues of survivorship, such as the child’s social needs, were revealed that need to be addressed as young children learn to live an everyday life with cancer and the effects of its treatment.

Methods

The present paper aims to describe the actions taken by the Child Life Specialist Department at a paediatric hospital in the West of Sweden based on these results.

Results

Child Life Specialists (CLS) play an integral role on the oncology team. Guidelines and working practise were developed to meet the child’s social needs. CLS are now present at visits made to preschool/schools together with the consultant oncology nurses and maintain contact with preschool/school personnel over time. Through brochures and meetings the CLS spreads information on the child’s social needs to surrounding municipalities and other CLS teams in Sweden.

 

Conclusions

The results of studies with young children with cancer need to be implemented and evaluated in clinical care. Traditionally, studies within nursing are disseminated to and implemented by nursing staff. The present study shows how other disciplines can be involved in the dissemination and implementation of nursing study results- with the child and the child’s needs as the guiding point.

Keywords
Childhood cancer, Everyday life, Young child, Child Life Specialists
National Category
Nursing
Research subject
Människan i vården
Identifiers
urn:nbn:se:hb:diva-15513 (URN)
Conference
50th Congress of the International Society of Paediatric Oncology (SIOP 2018), Kyoto, November 16-19, 2018
Available from: 2019-01-02 Created: 2019-01-02 Last updated: 2019-01-03Bibliographically approved
Darcy, L., Enskär, K. & Björk, M. (2018). Young children's experiences of living an everyday life with cancer – A three year interview study. European Journal of Oncology Nursing
Open this publication in new window or tab >>Young children's experiences of living an everyday life with cancer – A three year interview study
2018 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122Article in journal (Refereed) Epub ahead of print
Abstract [en]

Purpose

The young child's experiences of living with cancer are crucial to providing evidence based care. This study explores and describes experiences of everyday life of young children with cancer, over a three year period from diagnosis.

Method

This is a longitudinal, inductive interview study with young children with cancer, and their parents. Interviews from shortly after diagnosis, six and 12 months after diagnosis have been reanalysed. Interviews with the same children and their parents from 18 to 36 months after diagnosis have been analysed for the first time in the present paper. A longitudinal temporal analysis at category level for five synchronic data sets forms the basis for the results.

Results

The child living with cancer over a three year period is described as a child apart, striving to live an everyday life. This description is built on three categories: I want to be a child like any other, I need security and control and I feel lonely and left out. Young children with cancer actively strive to understand their illness, participate in care and live an ordinary everyday life- but with ongoing feelings of social isolation and loneliness.

Conclusions

Young children with cancer need access to and ongoing contact with peers and preschool. A structured follow-up throughout the cancer trajectory and not just during active treatment, is necessary. A child-centred philosophy of care would guide the child towards attainment of health and wellbeing.

Place, publisher, year, edition, pages
Elsevier, 2018
Keywords
Childhood cancer, Everyday life, Young child, Longitudinal
National Category
Cancer and Oncology Nursing
Identifiers
urn:nbn:se:hb:diva-15594 (URN)10.1016/j.ejon.2018.12.007 (DOI)000462419500001 ()
Available from: 2019-01-02 Created: 2019-01-03 Last updated: 2020-01-31Bibliographically approved
Björk, M., Darcy, L., Jenholt Nolbris, M. & Hedman Ahlström, B. (2017). Att vara barn och möta sjukdom.. In: Eva Benzein (Ed.), Att möta familjer i vård och omsorg:: . Lund: Studentlitteratur AB
Open this publication in new window or tab >>Att vara barn och möta sjukdom.
2017 (Swedish)In: Att möta familjer i vård och omsorg: / [ed] Eva Benzein, Lund: Studentlitteratur AB, 2017Chapter in book (Refereed)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2017
National Category
Health Sciences
Research subject
Människan i vården
Identifiers
urn:nbn:se:hb:diva-15570 (URN)9789144115870 (ISBN)
Available from: 2019-01-02 Created: 2019-01-02 Last updated: 2019-01-03Bibliographically approved
Organisations

Search in DiVA

Show all publications