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Dalheim Englund, Ann-Charlotte
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Jarling, A., Rydström, I., Fransson, E. I., Nyström, M., Dalheim Englund, A.-C. & Bravell, M. E. (2022). Relationships first: Formal and informal home care of older adults in Sweden. Health & Social Care in the Community
Öppna denna publikation i ny flik eller fönster >>Relationships first: Formal and informal home care of older adults in Sweden
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2022 (Engelska)Ingår i: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524Artikel i tidskrift (Refereegranskat) Epub ahead of print
Abstract [en]

To a great extent, older people in Sweden, often with extensive care needs, are cared for in their own home. Support is often needed from both family and professional caregivers. This study aimed to describe and analyse different aspects of health, functioning and social networks, and how they relate to formal and informal care in the home among older adults. Analyses were performed utilising data from the OCTO-2 study, with a sample of 317 people living in Jonkoping County, aged 75, 80, 85 or 90 years, living in their own homes. Data were collected with in-person-testing. Based on receipt of care, the participants were divided into three groups: no care, informal care only, and formal care with or without informal care. Descriptive statistics and multinomial regression analysis were performed to explore the associations between received care and different aspects of health (such as multimorbidity, polypharmacy), social networks (such as loneliness, number of confidants) and functioning (such as managing daily life). The findings demonstrate that the majority of the participants received no care at home (61%). Multimorbidity and polypharmacy were more common among those receiving some kind of care in comparison to those who received no care; moreover, those receiving some kind of care also had difficulties managing daily life and less satisfaction with their social networks. The multinomial logistic regression analyses demonstrated that age, functioning in daily life, perceived general health and satisfaction with the number of confidants were related to receipt of care, but the associations among these factors differed depending on the type of care that was received. The results show the importance of a holistic perspective that includes the older person's experiences when planning home care. The results also highlight the importance of considering social perspectives and relationships in home care rather than focusing only on health factors.

Nyckelord
community, family caregiving, health and social care, health care, home care, informal care, older people, PEOPLE, HEALTH, LIFE
Nationell ämneskategori
Omvårdnad
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-27717 (URN)10.1111/hsc.13765 (DOI)000772823500001 ()2-s2.0-85127257006 (Scopus ID)
Forskningsfinansiär
Futurum - Akademin för hälsa och vård, Jönköpings län, 13282
Tillgänglig från: 2022-04-04 Skapad: 2022-04-04 Senast uppdaterad: 2022-04-12Bibliografiskt granskad
Gillsjo, C., Nyström, M., Palmér, L., Carlsson, G., Dalheim Englund, A.-C. & Eriksson, I. (2021). Balance in life as a prerequisite for community-dwelling older adults' sense of health and well-being after retirement: an interview-based study. International Journal of Qualitative Studies on Health and Well-being, 16(1)
Öppna denna publikation i ny flik eller fönster >>Balance in life as a prerequisite for community-dwelling older adults' sense of health and well-being after retirement: an interview-based study
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2021 (Engelska)Ingår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 16, nr 1Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

PURPOSE This study aimed to describe community-dwelling older adults’ perceptions of health and well-being in life after retirement.

METHODS This study is part of a larger project using a mixed-methods design to address lifestyles’ influence on community-dwelling older adults’ health. Individual semi-structured interviews were conducted with 18 older adults in age 70 to 95 years. Data were analysed according to a phenomenographic approach.

RESULTS The results encompass four categories describing variations in community-dwelling older adults’ perceptions of health and well-being after retirement: feeling well despite illness and disease, interacting with and being useful for oneself and others, independently embracing opportunities and engaging in life, and maintaining a healthy lifestyle.

CONCLUSIONS The absence of illness and disease is not a clear prerequisite for a sense of health and well-being. To promote and preserve health and well-being after retirement, older adults strived for—and coached themselves to uphold—a balance in life, focusing on not burdening others. This life orientation after retirement must be acknowledged by society at large, especially from an ageist perspective, and in health and social care to preserve and promote health and well-being.

Nyckelord
Health, lifestyle, older adults, community, life balance, retirement, well-being, qualitative, phenomenography, QUALITY-OF-LIFE, AGED 85 YEARS, PHYSICAL-ACTIVITY, SOCIAL-ISOLATION, LONELINESS, PREDICTOR, CONCEPTIONS, COHERENCE, MORTALITY
Nationell ämneskategori
Omvårdnad
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-26824 (URN)10.1080/17482631.2021.1984376 (DOI)000706099300001 ()2-s2.0-85116918944 (Scopus ID)
Tillgänglig från: 2021-10-28 Skapad: 2021-10-28 Senast uppdaterad: 2024-02-01
Jarling, A., Rydström, I., Ernsth Bravell, M., Nyström, M. & Dalheim Englund, A.-C. (2020). Perceptions of Professional Responsibility When Caring for Older People in Home Care in Sweden. Journal of Community Health Nursing, 37(3), 141-152
Öppna denna publikation i ny flik eller fönster >>Perceptions of Professional Responsibility When Caring for Older People in Home Care in Sweden
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2020 (Engelska)Ingår i: Journal of Community Health Nursing, Vol. 37, nr 3, s. 141-152Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Older people in Sweden are increasingly being cared for in the own home, where professional caregivers play an important role. This study aimed to describe perceptions of caring responsibility in the context of older people’s homes from the perspective of professional caregivers from caring professions. Fourteen interviews were conducted with professional caregivers from different professions. The result show how professional caregivers perceive responsibility as limitless, constrained by time, moral, overseeing, meaningful and lonesome. Responsibility seems to affect caregivers to a large extent when the burden is high. Professional caregivers’ perceptions of responsibility, and the potential consequences of a perceived strained work situation therefore need to be addressed. The findings also indicate a need for professional support and guidance when it is difficult to distinguish between professional and personal responsibility.

Nationell ämneskategori
Omvårdnad
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-23963 (URN)10.1080/07370016.2020.1780044 (DOI)000561996900003 ()2-s2.0-85089745456 (Scopus ID)
Tillgänglig från: 2020-10-22 Skapad: 2020-10-22 Senast uppdaterad: 2021-10-21Bibliografiskt granskad
Palmér, L., Nyström, M., Carlsson, G., Gillsjö, C., Eriksson, I. & Dalheim Englund, A.-C. (2020). The intertwining of reconciliation and displacement: a lifeworld hermeneutic study of older adults’ perceptions of the finality of life. International Journal of Qualitative Studies on Health and Well-being, 15(1), 1-11, Article ID 799588.
Öppna denna publikation i ny flik eller fönster >>The intertwining of reconciliation and displacement: a lifeworld hermeneutic study of older adults’ perceptions of the finality of life
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2020 (Engelska)Ingår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 15, nr 1, s. 1-11, artikel-id 799588Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Purpose: This study aimed to explain and understand the existential meaning of the finality of life from the perspective of healthy older adults. Method: Participants were recruited from a major project on older adults’ life situations. They were interviewed about their thoughts on the end of life, and their responses were interpreted using a lifeworld hermeneutic approach. Results: The findings showed that thinking about the inevitable finality of life involves feelings of liberation, frightening thoughts, a comforting promise of something beyond death, acceptance of the concept of death as a companion in life and, a desire to live. Philosopher Simone de Beauvoir’s existential ideas about ageing and death were then used to further explain and understand the meaning of the finality of life and to support a comprehensive understanding. de Beauvoir suggests that when the temporal horizon of existence shrinks, one lives closer to the finality of life. For a comprehensive understanding, attributing meaning to the finality of life required the intertwining of reconciliation and displacement. The interpretations were further discussed using ideas from the fields of existential philosophy and caring science in order to develop a basis for caring practice. Conclusions: The conclusions suggested that professional health care for older adults would benefit from a lifeworld-led caring science approach that includes readiness for a caring dialogue that focuses on existential issues.

Nyckelord
Existential matters; existential caring science; caring dialogue; lifeworld hermeneutics; finality of life; older adult
Nationell ämneskategori
Omvårdnad
Identifikatorer
urn:nbn:se:hb:diva-23691 (URN)10.1080/17482631.2020.1799588 (DOI)000556400700001 ()2-s2.0-85089151258 (Scopus ID)
Tillgänglig från: 2020-08-13 Skapad: 2020-08-13 Senast uppdaterad: 2022-11-01Bibliografiskt granskad
Jarling, A., Rydström, I., Ernsth-Bravell, M., Nyström, M. & Dalheim Englund, A.-C. (2019). A responsibility that never rests - To be a family caregiver to an older person. Scandinavian Journal of Caring Sciences
Öppna denna publikation i ny flik eller fönster >>A responsibility that never rests - To be a family caregiver to an older person
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2019 (Engelska)Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background

When the ageing population increases, the burden and responsibility of close family members will likely increase. Those closely related who assume a great responsibility can be significantly affected in health, well‐being and daily life.

Aim

This study aims to describe the life situation when family caregivers are imposed responsibility for an older person with complex care needs in their own home.

Methods

In this Swedish qualitative study, ten family caregivers were strategically selected in order to achieve variations in the life situation. A reflective lifeworld research design based on phenomenological philosophy was used throughout the data collection with the lifeworld interviews and the analytic process.

Findings

In terms of extensive responsibility, the life situation is complex and involves emotions that are difficult to manage. In essence, a paradoxical life situation is described which is experienced as both voluntarily and nonchosen at the same time. The responsibility never rests. The essential meaning is further illustrated with three constituents: loss of freedom, contradictory feelings and affected relationships.

Conclusion

A life situation with extensive responsibility for an older family member interferes with the whole life situation with an impact on health and relationships with other people. The findings are crucial for professional caregivers in order to capture the nature of family support in a way that enables a meaningful life for both the family caregiver and the older person being cared for. Knowledge of this will give professional caregivers an increased awareness of the life situation of family caregivers and provide a better understanding of the support they are longing for, and, in some countries, such as Sweden, also are entitled to by law.

Nationell ämneskategori
Omvårdnad
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-21011 (URN)10.1111/scs.12703 (DOI)000516881800005 ()2-s2.0-85065418558 (Scopus ID)
Tillgänglig från: 2019-05-10 Skapad: 2019-05-10 Senast uppdaterad: 2021-10-20Bibliografiskt granskad
Dalheim Englund, A.-C., Carlsson, G., Nyström, M., Gillsjö, C., Eriksson, I. & Palmér, L. (2019). Life without professional work-perceptionsabout one’s self, interpersonal relations andsocial life after retirement. Healthy Aging Research, 8(1), 1-18
Öppna denna publikation i ny flik eller fönster >>Life without professional work-perceptionsabout one’s self, interpersonal relations andsocial life after retirement
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2019 (Engelska)Ingår i: Healthy Aging Research, Vol. 8, nr 1, s. 1-18Artikel i tidskrift (Refereegranskat) Epub ahead of print
Abstract [en]

The aim of this study is to understand how healthy, older adults in Sweden perceive their life situation after retirement. The study is based on a lifeworld approach, and a phenomenographic method was used. Eighteen participants were interviewed, and data were analysed according to the phenomenographic principle of qualitatively different categories. Two categories were developed. The first category, “perceptions that draw attention inward, towards one’s self”, was further described in three subcategories: Sense of decreased status in society, the desire to keep aging at a distance, and contemplation of one’s own existence. The second category, “perceptions that draw attention outward, away from one’s self” was further described in the following four subcategories: caretaking of family members, involvement in social relationships, finding of deep meaning in animals and nature and engagement with society. In the discussion, the findings are further illuminated through comparisons with concepts such as maturity, wisdom and gerotranscendence, and reflections on the findings ‘relevance to a caring context follow. The conclusion suggests this study can provide knowledge that will allow healthcare providers to bridge the gap between generations in order to provide high-quality care. However, for a more profound caring dialogue, for example, about the end of life, a deeper analysis is required.

Nationell ämneskategori
Omvårdnad
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-15888 (URN)10.12715/har.2019.8.2 (DOI)000467323300001 ()
Tillgänglig från: 2019-03-21 Skapad: 2019-03-21 Senast uppdaterad: 2024-02-01Bibliografiskt granskad
Palmér, L., Nyström, M., Carlsson, G., Gillsjö, C., Eriksson, I. & Dalheim Englund, A.-C. (2019). The meaning of growing old: A lifeworld hermeneutic study on existential matters during the third age of life. Healthy Aging Research, 8(8), 1-7
Öppna denna publikation i ny flik eller fönster >>The meaning of growing old: A lifeworld hermeneutic study on existential matters during the third age of life
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2019 (Engelska)Ingår i: Healthy Aging Research, ISSN 2261-7434, Vol. 8, nr 8, s. 1-7Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

This study investigates existential matters in the third age of life, which encompasses the years after retirement and ends when extensive support needs emerge in the fourth age. As the theoretical starting point in a lifeworld hermeneutic approach, 18 healthy older adults were interviewed about what it means for them to grow old. The interviews were interpreted according to Gadamer’s principles of openness and Ricoeur’s proposal to provide suggestions on how meaning can be explained. The findings are presented in three interpreted themes: Feeling free, Becoming vulnerable, and Existing in closeness to death. The themes are further interpreted, and a comprehensive understanding is reached with theoretical support from Jean-Paul Sartre’s idea of factuality and project. The meaning of growing old is discussed in terms of positive factors, such as healthy aging, transition and gerotranscendence, but also in respect to concerns over future suffering in relation to illness and dependence. It is concluded that the freedom of the third age is greatly appreciated for a healthy life, but also threatened by increased risks of ill health. It is not morbidity in itself that worries most, but the risk of being dependent on care and support from others. This is important to consider when planning and performing care in order to promote a healthy aging.

Nyckelord
Caring science, Dependence on care, Existential matters, Healthy aging, Lifeworld hermeneutics
Nationell ämneskategori
Omvårdnad
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-21588 (URN)10.35248/har.2019.8.8 (DOI)000489302100001 ()
Tillgänglig från: 2019-08-12 Skapad: 2019-08-12 Senast uppdaterad: 2024-02-01Bibliografiskt granskad
Jarling, A., Rydström, I., Ernsth-Bravell, M., Nyström, M. & Dalheim Englund, A.-C. (2018). Becoming a guest in your own home: Home care in Sweden from the perspective of older people with multimorbidities. International Journal of Older People Nursing, 13(3)
Öppna denna publikation i ny flik eller fönster >>Becoming a guest in your own home: Home care in Sweden from the perspective of older people with multimorbidities
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2018 (Engelska)Ingår i: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 13, nr 3Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Abstract Background: In line with changing demographics, conditions for older people have also changed. Older people are expected to live and be cared for in their own home for as long as possible. Increasing age also increases the risk of multimorbidity and the need for social services and health care services. Home care, instituted by different laws, is complex and requires cooperation from an older person when his/her home becomes a workplace for service providers.

Aim: This study aims to illuminate the meaning of being an older person with multimorbidity who lives alone and who is cared for in his/her own home.

Design: This study uses a qualitative design with a lifeworld approach.

Methods: Conducted in Sweden in 2016, the researchers interviewed 12 older persons that live alone and receive home care. Data was analysed using qualitative content analysis.

Results: The findings illustrate four sub-themes: adapting to a caring culture, being exposed, participation with limitations and being dependent on forced relationships. The overall theme reveals that older people experience a life-changing situation when receiving home care and they become a guest in their own home.

Conclusions: Becoming older with increased needs means to disrupt one’s life when one’s private home becomes a public arena. Caregivers need to be aware of the gap between their rights by law and an older person’s experiences of receiving home care. Only then can care be offered that enables older people to have a sense of control and experience their home as their own.

Implications for Practice: The findings emphasise the need to view older people as being self-determinant and independent. Older people receiving home care need to be seen as individuals, and their entire life situation should be considered by also acknowledging the important role played by relatives and caregivers.

Nyckelord
Older people, multimorbidity, caring, home care, lived experience, life world
Nationell ämneskategori
Omvårdnad
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-15643 (URN)10.1111/opn.12194 (DOI)000442344100006 ()29603651 (PubMedID)2-s2.0-85051844566 (Scopus ID)
Tillgänglig från: 2019-01-09 Skapad: 2019-01-09 Senast uppdaterad: 2020-11-13Bibliografiskt granskad
Rydström, I., Dalheim Englund, A.-C., Dellve, L. & Ahlstrom, L. (2017). Importance of social capital at the workplace for return to work among women with a history of long-term sick leave: a cohort study.. BMC Nursing, 14(16)
Öppna denna publikation i ny flik eller fönster >>Importance of social capital at the workplace for return to work among women with a history of long-term sick leave: a cohort study.
2017 (Engelska)Ingår i: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, ISSN ISSN 1472-6955, Vol. 14, nr 16Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background

The workplace is an essential source of social capital for many people; it provides mutual support and gives meaning to life. However, few prospective studies have thoroughly investigated the importance of aspects of social capital in the workplace. The aim of this study was to investigate the associations between aspects of social capital (social support, sense of community, and quality of leadership) at the workplace, and work ability, working degree, and vitality among women with a history of long-term sick leave from human service organizations.

Methods

A longitudinal cohort study was performed among women with a history of long-term sick leave. The study started in 2005, and the women were followed up at 6 months, 1 year, and 6 years using self-reported questionnaires (baseline n = 283). Linear mixed models were used for longitudinal analysis of the repeated measurements of prospective degree of work ability, working degree, and vitality. Analyses were performed with different models; the explanatory variables for each model were social support, sense of community, and quality of leadership and time.

Results

Social capital in terms of quality of leadership (being good at solving conflicts and giving high priority to job satisfaction), sense of community (co-operation between colleagues) and social support (help and support from immediate superiors and colleagues) increased the women’s work ability score (WAS) as well as working degree over time. Additionally, social capital in terms of quality of leadership increased the women’s vitality score over time.

Conclusions

A sustainable return-to-work process among individuals with a history of long-term sick leave, going in and out of work participation, could be supported with social support, good quality of leadership, and a sense of community at the workplace. The responsibility for the rehabilitation process can not be reduced to an individual problem, but ought to include all stakeholders involved in the process, such as managers, colleagues, health care services, and the social security agency.

Nyckelord
Cohort, Sickness absence, Social attachment, Social capital, Vitality, Work ability, Quality of leadership
Nationell ämneskategori
Medicin och hälsovetenskap
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-13258 (URN)10.1186/s12912-017-0234-2 (DOI)000405812500001 ()28725159 (PubMedID)2-s2.0-85023643292 (Scopus ID)
Forskningsfinansiär
Forte, Forskningsrådet för hälsa, arbetsliv och välfärd
Tillgänglig från: 2017-12-18 Skapad: 2017-12-18 Senast uppdaterad: 2018-08-20Bibliografiskt granskad
Johansson, R.-M., Nyström, M. & Dalheim Englund, A.-C. (2017). Reflective team and process-oriented supervision – a case study on differences. Reflective Practice, 737-749
Öppna denna publikation i ny flik eller fönster >>Reflective team and process-oriented supervision – a case study on differences
2017 (Engelska)Ingår i: Reflective Practice, ISSN 1462-3943, E-ISSN 1470-1103, s. 737-749Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

To meet the Swedish healthcare legislation’s requirements for evidence-based care, a work model for reflection has been developed, called a reflective team (RT). Because this RT model can be perceived as either a competitor of or a complement to caring supervision, this case study aims to explore what distinguishes these two in psychiatric care. Five members of one RT who are psychiatric nurses with previous experiences in caring supervision were interviewed. The transcribed interviews were analysed according to phenomenography. The findings reveal three qualitatively separated categories, which describe differences in focus, competencies, and relationships between confirmation and demands. It is concluded that an RT by no means replaces supervision. Instead, both can contribute to care improvement by complementing each other and increasing the professionalism of psychiatric nurses

Nyckelord
Reflective team, caring supervision, primary psychiatric care, case study, phenomenography, lifeworld
Nationell ämneskategori
Hälsovetenskaper
Forskningsämne
Människan i vården
Identifikatorer
urn:nbn:se:hb:diva-13291 (URN)10.1080/14623943.2017.1351348 (DOI)000416668800002 ()2-s2.0-85026233650 (Scopus ID)
Tillgänglig från: 2017-12-31 Skapad: 2017-12-31 Senast uppdaterad: 2018-12-07Bibliografiskt granskad
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